newby - just found out I have breast cancer

i have just been told i have breast cancer. so scared

Parents
  • Hi Quo,

    A very warm welcome to our forum.

    I am so sorry to hear that you have just been told that you have breast cancer. Do you know what type of breast cancer you have, or what stage it is? Receiving a cancer diagnosis always comes as a shock. It opens up so many unknowns and gives reign to out overactive imaginations. It takes some time to get to the stage where we know exactly what treatment will lie ahead, but it does become easier to deal with, once you know what you have to face.

    Treatments for breast cancer have come a long way in recent years and more people are now living with it. I myself, have had 2 bouts, within a year of each other. That was 14 years ago now and I still lead a busy and fulfilling life - here's hoping that you will too.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • i dont know yet what type it is, going tomorow to find out. Dr said its 15mm and im sure she also the ultra sound in my armpit was clear. But the look on her face keeps making me think she knows it is bad.  

  • Yes I will ,had a call today ,results back got to go Monday. But gutted because I usually go to Friday clinic so was hoping it would be tomorrow don't know why changed to Monday and admiin rang me so could not  tell me anything said theyd just been asked to call & confirm Monday was good for me!  Breast nurse usually rings. What s predict?  I get it's a worry ,we're all different in what we might want or not want . It's our journey have to do what' we feel is right for us xx

  • Hi Gareece,

    I'm glad to hear that you are healing well and that you are back to work and driving after only 3 weeks - well done! I'm happy to hear that you have confidence in your care team and are doing all they can for you. Your course of treatment could change when you get your results, but here's hoping that they stay the same.

    I see in your post today that you now have an appointment for Monday. When your results come back, your case is first discussed at a multidisciplinary team meeting (MDT), who will be involved in your care. They discuss your case and decide on the best form of treatment for you. It is possible that this meeting will be held tomorrow and that may be why your appointment is not until Monday.

    Predict is an online tool used to help patients and clinicians see how different treatments for early invasive breast cancer might improve survival rates after surgery.

    I hope that your results are as good as they can be on Monday. Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • My nurse rang me today. All clear margins no lymph node.involement . Just 5:sessions radiotherapy in Jan. Then will discuss any benefits of hormone blocker so I can make informed decision. I can't tell you how pleased I was today. Check up on my surgery Monday 

  • Hi Gareece,

    I am delighted to hear that your lymph nodes were all clear and can only imagine the relief you must feel tonight, having heard this. It is also good to hear that you can enjoy Christmas and New Year, before you start your radiotherapy. This also gives you time to read up on and discuss the benefits and side-effects of hormone therapy. You will find it helpful to write down any questions as you think of them. By doing this, you will be better prepared to discuss this matter, when you next see your consultant or oncologist.

    Kind regards,

    Jolamine xx

  • Thank you Jolamine for all good advice and supportive chats. I feel on top of the world today. Enjoy your weekend xxxx

  • Hi Gareece,

    Have a great weekend yourself - you deserve one after all that worry!

    Jolamine xx

  • Hi jolamine.

    Saw the consultant today. So he went through predict with me and agreed very slim benefit. Over5 years will gain a 0.2% benefit is take the letrozole and 0.6 % over 10 years so less than 1% . As it's national standard he's asked I try it for 4 weeks and if then want to withdraw from it they will support my decision so I'll work with him  xxx. 

  • Hi Gareece,

    I'm glad to hear that your consultant took the time to explain Predict to you. It sounds as if you have a better understanding of this now. I'm glad to hear that you have agreed to try treatment for 4 weeks and that he is happy to support you if you want to withdraw after that. Do you feel happy with this agreement?

    It must also be a relief to you that he will carry out a breast reduction on both sides, when you've finished your radiotherapy.

    Kind regards,

    Jolamine xx

  • I feel listened to and both the consultant and nurse said the negatives by far out way the benefits to me .but the algorithm used is wide not specifically designed for me personally ,which I understand. I will respect he feels it's standard and try. The first signs of nasty side affects I will stop. I had a bad time in menopause in all kinds of ways and worked very hard with perseverance at the gym ,working on mental health and not going down the medication route that I'm not prepared to take myself back to something that was extremely difficult for such a  very very small differential. I have family who are still on it or have been on and feel I shouldn't start it when looking at that stats and benefits.  Respect for my team and consultant I felt 4 weeks was a fair compromise.

    Kind regards

    Christine xx

  • So I have since yesterday had palpitations, didn't sleep well. Hot flushes and really bad anxiety ! Is this the start of side affects of letrozole?

Reply Children
  • HI Gareece,

    I'm sorry to hear that you've had a bad night. When I was on Letrozole, I had less anxiety than on Tamoxifen. I did have sleep problems and hot flushes and had a lot more joint pain than I did with Tamoxifen.

    The side-effects sometimes lessen, when you've been taking this for about 4 weeks.

    I hope that you have a better sleep tonight.

    Jolamine xx