newby - just found out I have breast cancer

i have just been told i have breast cancer. so scared

  • Online in reply to Quo

    Mine was Ductal  & invasive 22mm . All very postive from my MDT team . I couldn't comment medically   on your letter as I am not trained . I will say so much that can be done these days and so many positive journeys on here including my own and a family member. Although the unknown is very scary ,once you know the treatment path a weight is lifted. Stay positive and keep in touch xxx

  • Offline in reply to Gareece

    mine is invasive ductal 13mm, grade 3, eastrogen and prgestorone receptor pos, her2 neg. Stage 1. Need a lumpectomy but have asked for breast reduction at same time. had to have diazapn before i went

  • Offline in reply to Jolamine

    mine is invasive ductal 13mm, grade 3, eastrogen and prgestorone receptor pos, her2 neg. Stage 1. Need a lumpectomy but have asked for breast reduction at same time. had to have diazapn before i went

  • Online in reply to Quo

    Ah that's good. Have they agreed ? I was under team for breast reduction before my screening and diagnosis but my trust won't combine the two ! At least you won't have to have two surgeries now. Good luck with everything xx

  • Offline in reply to Gareece

    oh no, that means i prob wont get it either, the cancer nurse said she will put it in the letter but she didnt think they would. This diagnosis has forced me to open up about my anxiety, how are you coping?

  • Online in reply to Quo

    Not necessarily different trusts have different funding etc.  I'm ok. I have had wobbles. Initially shock as it was a call back from routine screening. Still wouldn't have known day I had surgery . Consultant couldn't feel it either so I suppose screening was a blessing ! I had some tears and worries of what will happen . I managed to keep my self busy with work and philosophy in life is no point worrying  over what I can't change and what will be will be. I took advise from my medical team. Eat healthy but I'm quite healthy anyway . Ive continued with my exercise and gym. For me it's good for mental health and frame of mind  and very generally I've stayed positive .I feel if I didn't it would very easy for my mind to runaway with me and I would probably make myself poorly . So I've kept things as normal as possible. I've talked about it and organised a wear it pink day in work raising 400 pounds. That I feel allowed others to not feel uncomfortable around me. People tread a little on eggshells because they don't know what to say. Id just offer in support to you  and say you do you !! If your anxious talk about it ,it can only be a good thing that your opening up to people .And it's ok to be scared and worried about the unknown . Sending hugs xxx keep talking xx

  • Offline in reply to Gareece

    Thank you for that x i am a very anxious person but i am really trying to be strong x

  • Offline in reply to Quo

    Mine was 22mm and I panicked thinking that was huge but its really not. I had idc upper right breast, no lymph involvement. Lumpectomy with a tiny neat scar, 4 nodes taken. 5 days of radiotherapy and 5 years anastrozole as mine was hormone fed. You will get through this. Good luck and don't panic x

  • I think everyone who walks away from clinic having  had this awful news is already stronger than they think! It's a whirlwind of shock and trying to make sense of it all. Don't be hard on yourself ,your doing great just by the fact your talking and sharing your worries . It's a scary time but like haideesmun has said you will get through this . Peoples journey sharing is inspirational and all very postive .xxx

    Haideesmun. How have you found the anasrozole?  Mine was er postive. Pr negative and her2 negative so waiting to hear if I need hormone blocker after radiotherapy xx

  • Mine was er/pr 8/8 her2 negative. The anastrozole side effects haven't been that bad really. I came through the menopause relatively unscathed so I'm now back in it but with hot flushes ! Not impressed with those. Different brands give different side effects sadly. My feet hurt, muscle weakness, joint aches, brain fog (already had that anyway), my ankles feel but don't look swollen. A few mood swings and I think my hair is shedding again but not majorly. Some people have an awful time with the side effects and others nothing. But, if it stops it coming back I'll put up with it. Radiotherapy was a doddle, my oncotype score came back 12 so luckily no chemo. I've been very lucky, you can hardly see my scar. It's a bit hard trying to pick myself up though and shed the weight I've put on (comfort / stress eating). Good luck x