I hope you gain some confidence from your medical team. The feeling of panic does subside but it’s very important to use these forums to tell us things that you might not want to tell your family. I never wanted to worry them. I found comfort in talking to complete strangers. The hospitals are so much better now. They have so many tools in their toolbox to help us. There can also be more innocent explanations even with those blood test results. I hope it is all good news for you xx

I hope you gain some confidence from your medical team. The feeling of panic does subside but it’s very important to use these forums to tell us things that you might not want to tell your family. I never wanted to worry them. I found comfort in talking to complete strangers. The hospitals are so much better now. They have so many tools in their toolbox to help us. There can also be more innocent explanations even with those blood test results. I hope it is all good news for you xx

Thank you, I appreciate it. 

I haven't even told my family yet, I don't want to worry them before I know more. That, and if I don't tell them, it's a bit easier to try and forget about it all. xx

Thanks for replying. I’m in panic mode right now! Feel so ill suddenly, think I’m just shocked. I’ll calm down this evening. And make a plan.

I’ve just told my husband who is very supportive but I’m not telling the children until I find out more after the colonoscopy. 

Maybe get a nice cup of tea or something and hunker down on the sofa with a blanket and a hot water bottle? That's what I'm doing this evening to try and just find a bit of comfort.

It’s very difficult to know when to tell family. The first thing that I thought about was “how do I tell my family ?”  I waited until I had a result and I had to tell them. But that can lead to them worrying about what you are NOT telling them. In the end it is YOU that needs the support and you might find telling them is really helpful and they will want to help you. But I completely understand not telling them. 

i am sure there are many reasons for higher levels of CA125 and many of them are benign and innocent. We always have to assume the best but it’s hard isn’t it. 

That’s a good idea. There are so many innocent explanations for your symptoms but your husband sounds very supportive. 

I find comfort in tea and chocolate. Putting something funny on the telly. Getting engrossed in something. Funnily enough I never found ironing helpful. Which is a great convenience. 

it’s when we are busy focussing on something that’s totally absorbing that we can forget about it all for a little bit. 

Yes, I’m going to watch a film and try to switch off. I hope that you can too. 

Yes, I think so, and I know I’ll be more level headed about this tomorrow. I hope that you’re ok too.