Just scared for my docetaxel cycles...last 3 cycles of chemo, docetaxel...any tips for me please?

I am currently fighting breast cancer....I had abreast surgery for a lumpectomy on my right breast in January, they said initially they had removed it all, good to get back to life.....not a chance.....they said then that they wanted to send my tumors off to the USA for the oncotype DX test which returns in 2 weeks to see if I need chemotherapy or just luckily jump straight to radiotherapy, they were very sure radiotherapy would be all I needed along with hormone replacement pills ....I had just got engaged and said I would wait to book my wedding if this was the case to be sure.

I was then told after returning after the 2 weeks that my rest hadn't returned and that I should go ahead and book my wedding as they feel I should be good for radiotherapy.....they booked me in for another 2 weeks....no results still booked again for another 2 weeks but then suddenly they wanted me to go through chemotherapy options and sign the paperwork for it.....well....this wasn't even a thought on the last appointment....so this scared me....deposit paid down for the wedding, photographer, venue stylist paid for cake deposit made and dress bought etc.....well.....it appears that apparently my tumors were not sent off and would never be, as my cancer was grade 3 stage 3...I would definitely need chemo.

I was devastated.....as anyone is.....I was told this on the phone whilst I was checking for my results...I was then asked on a Friday this is, to nip to hospital as they want to take my bloods for me to start chemo on the Monday!....well....this went down like a lead balloon as you could imagine as I now had 3 days to prepare for chemo and was on the phone listening to this news whilst out with my fiancé and children looking for flower girls dresses and suits in the middle of town! I broke down and must have looked rediculous crying in the middle of town with my family...

Now when they were getting me to sign the chemotherapy paperwork a couple of weeks prior they stated that I'd be on mild chemo and would be ok for the wedding and the side effects I shall be used to by then....3 cycles 21days apart of Epirubicin and cyclosporine, and 3 cycles of T doxetacel.....I had no idea what this was but when I turned up at the hospital chemotherapy daycase....I was told it was the red devil chemo for the first 3 cycles and to be prepared for losing my hair and energy and lots of bone and joint aches.....fun times!

Well I lost so much hair in sections I ended up buying a wig...still got a wedding day to go ahead with....and thankfully after my third cycle lost a few lashes but nothing major and a few eyebrow lashes...I can cope with this.....but the bone aches joint aches and feelings worthless with no energy past midday on the daily I was not doing well.

I found out that it was best to take my injections for the five days at night time as I was feeling super tiered and ready to sleep, after taking ibuprofen and paracetamol and waiting for it to kick in prior to giving myself the jab, then laying down to sleep the injection off....I did this from cycle 2 and now 3. This worked for me but meant I woke up with a headache and sore breasts from surgery spots and scars...throbbing all over and body weakness to the fullest....I have 2 young children to wake up and get ready for school Mind you....so this took its toll for sure.

I am now 6 weeks away from my wedding day and 2 weeks away from my first of 3 doxetacel cycles to end my chemotherapy. 

I am so scared.....how am I going to cope for my wedding....how am I going to be able to cope with my kids....and I am seriously wondering if I am going to be able to just cope in general reading all the side effects, this red devil chemo has killed me....and boy have I struggled daily to just do washing pots cook n clean...

I feel mood swings are a major issue for me right now I go from not talking for long periods of time to just not being able to smile through funny things etc....is this normal? Is this going to get worse? Sore mouth...check.....loss of taste....also check....my breasts were healing nicely but daily they feel so sore again it's shocking.

Any tips of how to make my doxetacel cycles easier on me would be greatly appreciated xx

I've been with my man for years and this wedding is long awaited, but I don't want to be struggling with everything but all paid for now! 

I'm so scared it's rediculous and worry how I will cope, I just wanted to share my story and thank others for being very honest with us about everything they're going through.....we're not alone....others are dealing with much worse and we have a lot to be grateful for I get that....but my scared levels for this next 3 cycles is scaring me more than when I was told I had cancer and needed to lose half my breasts to get rid of it. 

It's nice to get this all of my chest and sorry again for the rambling....

It's great to have a forum like this to just be honest about my thoughts and feelings.....love to you all! Don't give up! We got this! We shall prevail and eventually be us again! ️ ️

Parents
  • Hello Miss-k-1, 

    I felt rather speechless reading your story - and that doesn't happen easily for me! What a brave inspirational lady you are. But what an anxious time it has been for you as you've had everything booked and ready to go for your wedding and were not initially expecting to need chemotherapy. Well done for getting through those first three cycles and it sounds like it wasn't easy and yet you managed to do all this cooking and cleaning and looking after your little ones. I hope that you will be able to fully enjoy your wedding and that you will have a wonderful day... just 6 weeks to go! It must be a little scary for you knowing that you are starting Docetaxel in a couple of weeks and not knowing how you will respond to treatment prior to your wedding. We have detailed information on our website on docetaxel which lists possible side effects you may encounter and you will find there tips to cope with side effects of cancer drugs but every experience is different and unique so it's hard to know in advance really how you might react to the treatment. I hope that you will hear from the experiences of others who have taken Docetaxel before and that they will have some good tips for you to help you make these cycles easier. I would also suggest you give our cancer nurses a call as I am sure they will have some good suggestions for you to help you feel your best despite your treatment on your big day - you can get in touch with them on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm.   

    I hope that you will have the best possible day - do come back if you don't mind and tell us how it all went as we will be thinking of you. Don't put any pressure on yourself if you can: this is YOUR big day, when your loved ones are all reunited for you and they be happy to adapt if you feel tired and need to rest or just need a moment on your own. Your guests will understand and everyone will be there for you to make your day go as smoothly as possible and for it to be a day of love that you will cherish forever.

    Massive congratulations from the Cancer Chat team! 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thank you so very much....it's been quite a rollercoaster of a ride for sure...but I work in a hospital ironically on the heamatology department as a HCA so I have been around and also helped patients in a much worse condition so I have an awful lot to be grateful for and I do thank the stars daily.

    But it has been hard going.... Very, and there does seem to be no end to the tiredness and aching I've felt daily...almost like I've ran a marathon in my sleep and woke up after it and had a few hours of gym on top.

    I shall certainly be checking out the side effects more closely over the next week to try and prepare for most outcomes of possible. Thank you for the well wishes. 

    I am lucky and have a fantastic support group and many friends I have been able to count on. Again I thank the stars for each of them.

    After 22yrs with my absolute rock of a man, I deserve at least one day to be the best day ever, and so does he, and I am determined my wedding day will be it no matter what! I have an amazing wedding coordinator that is on standby and fully aware of my situation and is happy to slow the day down and extend times for me if needed.

    Thank you so much for your response I am touched and appreciate it so much.

    Take care and I wish you health and happiness, keep smiling...keep up the great work and thanks again xx

Reply
  • Thank you so very much....it's been quite a rollercoaster of a ride for sure...but I work in a hospital ironically on the heamatology department as a HCA so I have been around and also helped patients in a much worse condition so I have an awful lot to be grateful for and I do thank the stars daily.

    But it has been hard going.... Very, and there does seem to be no end to the tiredness and aching I've felt daily...almost like I've ran a marathon in my sleep and woke up after it and had a few hours of gym on top.

    I shall certainly be checking out the side effects more closely over the next week to try and prepare for most outcomes of possible. Thank you for the well wishes. 

    I am lucky and have a fantastic support group and many friends I have been able to count on. Again I thank the stars for each of them.

    After 22yrs with my absolute rock of a man, I deserve at least one day to be the best day ever, and so does he, and I am determined my wedding day will be it no matter what! I have an amazing wedding coordinator that is on standby and fully aware of my situation and is happy to slow the day down and extend times for me if needed.

    Thank you so much for your response I am touched and appreciate it so much.

    Take care and I wish you health and happiness, keep smiling...keep up the great work and thanks again xx

Children
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