Advanced prostate cancer

I am 56 years old and I was diagnosed with advanced prostate cancer in October 23.

  • I am stage 4 and a Gleason score of 9.

    In February I was told I could have less than a12 month. I have a palliative treatment plan that includes Aberaterone and a month ago results showed that that the cancer was not showing signs of growth in all affected areas ie pelvis,hip,vertebrae,sternum and lymph nodes.

    I am very grateful but am having trouble responding to the good news-I am at a loss as to why?

  • Hi Wildhog.  Back in November 2022 I was told that I had about a year to live........well, I am still here in may 2024.  I have been told the same as you, that the cancer is showing no signs of further growth.  Of course I am very grateful that I am still here, but I get days when I feel so depressed.  You are wondering why you are not happier?  I guess the answer is that you have been through an incredibly traumatic experience, and you are still going through it. This cancer journey (that NONE of us signed up for) takes an incredible toll on a person, not just physically, but emotionally and psychologically.  You have not been told that you are cured, only that the cancer is showing no signs of growth.  Which is exactly the same situation that I am in.  There isn't a 'right' way or a 'wrong' way to feel about any of this.  I get days when I feel very happy and full of hope, and then I get days when a huge black cloud seems to be hanging over my head.  Please don't feel guilty that you are not feeling as 'happy' as you should be, everything you feel is perfectly valid.  I wish you well, x

  • Hi Wildhog and a warm welcome to the forum though sorry you have to be here I also have advanced prostate cancer, T4 and Gleason 10. diagnosed June 2022, and like you was told recently treatment had gone well,(Radiotherapy + HT) and though initially i felt good with the news, I think looking back it was more a case of relief that the cancer hadn't spread. Abiraterone is an excellent treatment, which has shown to be very effective over quite some time and I am happy it is working for you, PS i have never asked how long I may have, "I am terminal", as there is a lot of guess work involved and new treatments coming through all the time, so i just get on with my life making the most of my remaining time, best wishes to you and your family

    Eddie