Starting chemo tomorrow

Hi

After 3 surgeries to remove DCIS I unfortunately was diagnosed with invasive breast cancer last November. I’m now 9 weeks post op mastectomy with diep flap reconstruction. 
Having 3 lymph nodes removed during surgery it was found that the cancer had spread to 1 of the 3 nodes so chemotherapy was advised.

After a few hiccups and a wound infection I finally start my first round of chemotherapy tomorrow.
 EC every 2 weeks for  4 cycles then paclitaxel also every 2 weeks for 4 cycles.

To say I’m feeling a bit anxious about it all is an understatement, worried about the side effects and loosing my long hair, I’m thinking of maybe giving the cold cap a try.

Any advice would be appreciated. 

  • Oh bless you....ok well I had all 3 cycles of EC...also Epirubicin or red devil chemo, I did the cold cap for the first cycle but my hair started to fall out and got very unruly and hard to manage, it's super thick and it felt like straw so I knew it was practically a gonna....I got a wig and prepared for it, shaved my head and glad I did as it's very patchy and would've been more upsetting to have it fall out in my hands than see balding patches as I have....anyway, I didn't have the cold cap for last 2 cycles of red devil and felt much better for it....no headaches, or heavy head feeling etc....but some people it doesn't bother at all. I would try it, you will know when your hairs on its way out, it will go to straw feeling, hard to manage, sore to touch your scalp too....if this happens your hair will slowly mat up and falls out in small bits. This is when you need to decide wether to keep it as is and see how much falls out as it isn't definitely going to all fall out....but may well do too....I've got patches of hair all over that are super thin....only a few hairs in bulky patches....but hair is full thick in other areas....I decided I rather not shower to have clumps in my hair or be worried about it so I took the option to get a wig and brave the shave....bit my patches wouldn't have got away with leaving it as was. I wish you luck and best wishes and hope your experience is better xxx

  • Hi all,

    Today I finally got back on track with chemo after having my port fitted.

    Feeling ok so far, tried the cold cap again although my hair is so thin I can only just tie it back now and I’m still having issues getting a wig.

    Emma … how are you, hope you’re cold free and feeling good, how’s the hair doing?

    Maggie-May … how is your husband, any further forward? Hope you are well and managing, horrible time for you both.

    Miss-k-1 … Thank you for your advice, hope you are keeping well?xx

    Nichola xx

  • Hi. So lovely to hear your treatment has got back on track and you are feeling reasonably well. 

    Hubby is in hospital now as he is dehydrated and at high risk of malnutrition. He is on a waiting list as an in patient for a stent so hoping we hear something tomorrow. He has been on the waiting since last Friday, admitted last wednesday. 

    Hope everyone else is doing as well as can be expected. Sending you all love and hugs xx

  • I am glad your back on track! I decided to visit a few wig fitters myself, and ended up buying my own and asking the daycase I visited for my wig for the voucher and provided that to my wig fitter sre and they refunded my voucher amount. Sadly the voucher doesn't cover the whole cost, not by far. But the right fitters have some fairly affordable wigs. I hope this helps. I am glad you tried the cold cap though...I just couldn't manage it myself, headaches are a constant for me at the best of time when my aunt flow visits so to have that with the cold cap instantly put me off, and sadly I was also one person who it didn't work for, as my first cycle and also first and last cold cap didn't help my hair, as it instantly felt like a rocking horse head of hair, that thick straw harsh feeling rough hair and it got very matted and unruly....this is why I stopped it...a week later I shaved it after advice from my wig fitter telling me it would start to matt up and then fall out upon brushing So I decided early on to just get rid and start a fresh...sadly as it's fallen out and thinned massively in patches I do have to keep shaving it for now as I'd like it grow back the same length of possible. I don't have completely bald patches but to say how thick my hair usually is there's spots and big areas you could literally count the hairs that are there  .

    Anyway, best of luck to you and hope you manage the side effects well my lovely, chin up, we're here if you need to talk! Just remember although we sometimes feel like it, we are never alone in this! Take advantage of this site. All my love and best wishes to you xx

  • Hey, that’s great news I’m so glad you are back on track, that must be a relief. How are you feeling?  
    I’m ok thanks, my cold is gone but I have a lingering cough that the nurse said is because of the chemo irritating my throat now. It’s a bit annoying but I feel ok in general.

    i’m not sure about the hair, it’s shedding so much and although I do essentially have a full head of very thin hair, I’m just not really convinced any of it is fully attached anymore! I think if I was to give it a really good rub it could all come off! lol. I’m being so gentle with it but I wonder if I’m just prolonging the inevitable if you know what I mean? I’m just holding out hope that the shedding will slow down when I move onto paclitaxel, this afternoon will be my last EC xx