Starting chemo tomorrow

Hi

After 3 surgeries to remove DCIS I unfortunately was diagnosed with invasive breast cancer last November. I’m now 9 weeks post op mastectomy with diep flap reconstruction. 
Having 3 lymph nodes removed during surgery it was found that the cancer had spread to 1 of the 3 nodes so chemotherapy was advised.

After a few hiccups and a wound infection I finally start my first round of chemotherapy tomorrow.
 EC every 2 weeks for  4 cycles then paclitaxel also every 2 weeks for 4 cycles.

To say I’m feeling a bit anxious about it all is an understatement, worried about the side effects and loosing my long hair, I’m thinking of maybe giving the cold cap a try.

Any advice would be appreciated. 

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  • Oh bless you....ok well I had all 3 cycles of EC...also Epirubicin or red devil chemo, I did the cold cap for the first cycle but my hair started to fall out and got very unruly and hard to manage, it's super thick and it felt like straw so I knew it was practically a gonna....I got a wig and prepared for it, shaved my head and glad I did as it's very patchy and would've been more upsetting to have it fall out in my hands than see balding patches as I have....anyway, I didn't have the cold cap for last 2 cycles of red devil and felt much better for it....no headaches, or heavy head feeling etc....but some people it doesn't bother at all. I would try it, you will know when your hairs on its way out, it will go to straw feeling, hard to manage, sore to touch your scalp too....if this happens your hair will slowly mat up and falls out in small bits. This is when you need to decide wether to keep it as is and see how much falls out as it isn't definitely going to all fall out....but may well do too....I've got patches of hair all over that are super thin....only a few hairs in bulky patches....but hair is full thick in other areas....I decided I rather not shower to have clumps in my hair or be worried about it so I took the option to get a wig and brave the shave....bit my patches wouldn't have got away with leaving it as was. I wish you luck and best wishes and hope your experience is better xxx

  • Hi all,

    Today I finally got back on track with chemo after having my port fitted.

    Feeling ok so far, tried the cold cap again although my hair is so thin I can only just tie it back now and I’m still having issues getting a wig.

    Emma … how are you, hope you’re cold free and feeling good, how’s the hair doing?

    Maggie-May … how is your husband, any further forward? Hope you are well and managing, horrible time for you both.

    Miss-k-1 … Thank you for your advice, hope you are keeping well?xx

    Nichola xx

  • Hi. So lovely to hear your treatment has got back on track and you are feeling reasonably well. 

    Hubby is in hospital now as he is dehydrated and at high risk of malnutrition. He is on a waiting list as an in patient for a stent so hoping we hear something tomorrow. He has been on the waiting since last Friday, admitted last wednesday. 

    Hope everyone else is doing as well as can be expected. Sending you all love and hugs xx

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  • Hi. So lovely to hear your treatment has got back on track and you are feeling reasonably well. 

    Hubby is in hospital now as he is dehydrated and at high risk of malnutrition. He is on a waiting list as an in patient for a stent so hoping we hear something tomorrow. He has been on the waiting since last Friday, admitted last wednesday. 

    Hope everyone else is doing as well as can be expected. Sending you all love and hugs xx

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