hi Brionline and welcome to the forum, though sorry you have to be here. You are right 4+3 is different to 3+4, Gleason 3+4 cancer cells are slow growing, whereas 4+3 they usually grow at a moderate pace, and the tumour is showing secondary growth patterns which means your PCa is classed as high risk. So i have no idea why your biopsy results are taking so long, Don't believe everything you read i know many guys with your Gleason score who have been around a lot longer than 5 years, and when you do start treatment it will be done with curative intent, As for treatment as your tumour is T3 it will depend on whether its T3a or T3b, T3a then surgery is still an option, T3b then ADT+HT  with RT and maybe a Brachytherapy boost or possibly chemotherapy all with curative intent, keep asking for results, and offer to fill appointments left by others cancelling their, best wishes.

Eddie

Lots of good info there, but the problem I’ve got, is, I haven’t been told anything at all! I seem to be invisible, and I don’t matter. I maybe wrong, but that’s how I feel. Very angry that no one is talking to me, even a letter would be help full. My result’s haven’t even been sent to my GP surgery. Well time will tell. And a lot of telephone calls. 

Hi Kempster my apologies for the wrong username, Sadly your experience with delays is common, you are not being singled out, has your hospital got PALS patient advice and liaison service, If they do, pop in, or phone and explain your issues and they will speed things up, I recently used them as my oncology appointment  was due last November, Got 3 appointments within a week for the same day at 2 different hospitals, though i cancelled 2, PS, I have advanced prostate cancer and Gleason 10, take care,

Eddie

Hi Eddie, don’t know about PALS but you can be sure I will be searching that root out tomorrow. And thanks for your info. Perhaps sometime in the future I can help someone out rather than a receiver. 

Sounds good to me, all the best.

Eddie

Sounds good to me, all the best.

Eddie

WeThanks Eddie, you slipped your Gleason score in and nearly missed it, how are you doing on 10 I hope everything is going to plan and it’s starting to reduce and your recovery is coming soon .

Well I made quite a few phone calls this morning, and found out not even the hospital I had the Biopsy knew I had it, . After a  look around the computer they said yes we have had the results but didn’t know I have had to biopsy. Well after a deep discussion they have sent an email to the appointments dept so I can go onto a waiting list. I’m not holding my breathe. Waiting list could be at the earliest some time in April when I expect to go on another waiting list for treatment. I’ll write another chapter. Later on the year. 

Thanks Kempster, but my PCa is a very aggressive type, finished HT and RT last month, not to cure, so i have chosen to have no more treatment as i am doing ok, and enjoying what time i have left, take care.

Eddie

hope you told them if anyone cancels, you can fill in. take care 

Eddie

Well just to let you know folowing a chat with PALS (Thanks Eddie) and 45 previous phone calls to deffirent dept of the NHS, PALS got me an appointment on the 3rd April with a consultant. Guess what  ,,it was a cancellation spot (Thanks Eddie). so onwards I march. Thank You all.

Happy to help, all the best, Eddie