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Polycythemia Vera

BrenMax
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Hi, I'm Brenda and a year ago was diagnosed with Polycythemia Vera, apparently quite a rare blood disorder. I have been taking the chemo drug Hydroxycarbamide and having regular blood tests but would like to know if anyone else on the Forum suffers with this and their experience of it. I am getting quite depressed by it all as there is no known cure and I am now have side effects from the chemo.

Parents
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    Hi Brenda I to have this but at first I was diagnosed with Essential Thrombocythemia  I was on the same tablets as you but at the beginning of this month after complaining of having itching for around 3hours after a shower I was told I had p v now I’m on a tablet called jakavi Ruxolitinib the itching has nearly stopped I’m having my gallbladder out soon as there are large polips inside it just remember you are not alone always happy to chat 

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    Hi Brenda I to have this but at first I was diagnosed with Essential Thrombocythemia  I was on the same tablets as you but at the beginning of this month after complaining of having itching for around 3hours after a shower I was told I had p v now I’m on a tablet called jakavi Ruxolitinib the itching has nearly stopped I’m having my gallbladder out soon as there are large polips inside it just remember you are not alone always happy to chat 

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