Sorry I posted before I had finished writing. I was going to say that I did have every emotion going through my head when I found out and it did make me feel very frightened about what lay ahead. I haven’t been out since mid December except for hospital and GP appointments as I do not have the energy to walk very far, going upstairs is like climbing a mountain and my husband has learned how to use the washing machine . But I have to carry on and hope that tomorrow I may wake up with enough energy just to try and do something , anything outwith my home would be great as cabin fever I think is starting to set in. I hope your experience over the past year has got better as time has passed as I hope mine does

I am sorry you have had that kind of reaction. It can all be very scary. I have just been taken off Hydroxycarbamide as after 18 months just couldn’t tolerate the side effects anymore, especially really bad mouth ulcers. After my consultant decided against venesection I have just started on Ruxolitinib to see how that works. Unfortunately this on top of a few medical problems over the last few years ( I won’t bore you with the details) and the fact I live alone has made life a bit difficult. However I am determined to try not to let this get the better of me. I hope all goes well for you and your husband carries on doing the washing! 

I am sorry you have had that kind of reaction. It can all be very scary. I have just been taken off Hydroxycarbamide as after 18 months just couldn’t tolerate the side effects anymore, especially really bad mouth ulcers. After my consultant decided against venesection I have just started on Ruxolitinib to see how that works. Unfortunately this on top of a few medical problems over the last few years ( I won’t bore you with the details) and the fact I live alone has made life a bit difficult. However I am determined to try not to let this get the better of me. I hope all goes well for you and your husband carries on doing the washing!