I was diagnosed with Polycythemia Vera last November and had never heard of it either, I am still in shock and disbelief. Started Hydroxycarbamide in early December and had to pause it mid January due to all my levels dropping so low that I nearly needed a transfusion, that was scary. Next week I have a blood test to see how things are and whether treatment starts again so I will have to wait and see. I do have fatigue, dizziness, ringing ears, generally not in a good place as to why this has happened to me, so yes I know how you feel but we just have to get up each day and get on with it. Sorry about the long winded reply and can’t give you much help

Sorry I posted before I had finished writing. I was going to say that I did have every emotion going through my head when I found out and it did make me feel very frightened about what lay ahead. I haven’t been out since mid December except for hospital and GP appointments as I do not have the energy to walk very far, going upstairs is like climbing a mountain and my husband has learned how to use the washing machine . But I have to carry on and hope that tomorrow I may wake up with enough energy just to try and do something , anything outwith my home would be great as cabin fever I think is starting to set in. I hope your experience over the past year has got better as time has passed as I hope mine does

Sorry I posted before I had finished writing. I was going to say that I did have every emotion going through my head when I found out and it did make me feel very frightened about what lay ahead. I haven’t been out since mid December except for hospital and GP appointments as I do not have the energy to walk very far, going upstairs is like climbing a mountain and my husband has learned how to use the washing machine . But I have to carry on and hope that tomorrow I may wake up with enough energy just to try and do something , anything outwith my home would be great as cabin fever I think is starting to set in. I hope your experience over the past year has got better as time has passed as I hope mine does