Worrying about the wait for elderly mum

My elderly mum has stage 3 grade 2 breast cancer ilc. It feel like we were pulling teeth to be told that. She was diagnosed in early October, and had to really fight to get her lumpectomy just after Christmas, they were scheduling it for mid Jan. We've been waiting to get an appointment with the nurse and surgeon, and called and are seeing them a month now after surgery. Mum feels, and so do I now, that they don't care about her because she's old, but she deserves a chance and she wants one. She's had a hard life, but she loves her life now. Is this really not treatable?why are they being like this. She's so lovely. I know they're busy, but I think it's because she's just an older woman who has had her life to them. She's only 76 though.

  • T Taylor God bless you. It's weird, because my mum was the same with her dad he really wasn't the best dad to her but it was only her that used to look after him at the end. She used to have the same thoughts as you. They're perfectly normal. You're lovely to do what you do, please don't add an additional guilt on yourself. I feel guilty about mum all the time, should I ask more questions of the nurse, should I do more, if I snap about something I feel awful and the worse. Please try to go easy on yourself, and take care. I'm sure your dad appreciates you. None of us are perfect people are we. Much love, I really have you both in my prayers. Take care xxx

  • I know what you mean...no one seems to care. I am chasing my tail trying to get help for him. He is in a great deal of pain now as it has moved into his bones and round his body. It is heart breaking to see him like this but I am trying everything I can to get him the help he needs. The Dr's are so unsympathetic, they have prescribed him anti inflammatories for his pain but how is that going to work with bone cancer? the mind boggles. Like I said in my previous thread, Marie Curie can't give me a straight answer as to what stage he needs to be before they will admit him. I just can't keep spend each day going to see him not knowing if he's going to be alive, if he's slept, how much pain is he going to be in, as he been awake all night with insomnia and if so do I wake him or just sit until he wakes up. My life is just revolving around this whole situation. Then I try to get other things sorted for him but told "we need his permission to speak to you" when they already have so many times. I just want to scream! Thank you all for your replies, it really does help just speaking out. God bless you all x

  • I’m  so distressed to hear the journey that elderly cancer patients are experiencing. It’s heartbreaking because each elderly citizen has made a significant contribution to society and it’s scandalous they are ending their days in despair.

    As a carer for my mum l feel the pain and mental anguish that family carers suffer. It’s overwhelming, emotionally exhausting and frustrating. 
    Surely in 21st Century Britain we can do better. 
    l want my mother to thrive as long as possible and it seems so unfair that she went from tests that said she had no signs of cancer to a terminal diagnosis in 4 weeks. 

    We are left devastated by services that don’t seem to join up. The result is my incredible Mother is now dying. I wish all the people on this thread some peace. Wish l could give you all a hug  

  • Thelma awww Thank You. Love and hugs to you too. Best wishes to you and your mum and family. Pease take care of yourself. Mum and me are going to find out what's happening tomorrow morning, so it's very  difficult. Thanks for your kind words. Much love and prayers to your mum, and you. Xxx

  • Love and hugs to you all and you are right Thelma, in the 21st century you would think they could do better but unfortunately, the void is because there is no communication. My father's Dr is prescribing medication that he should not be taking because of a heart problem so I have to review all the medication myself as the conflict could cause blood clots. At one point he had two different types of anti depressant....one he was sent home from the hospital with and the other his Dr had prescribed which could together cause seizures. I am being Dr, nurse, Psychologist, carer and chemist for him at the moment in addition to being on call 24/7. It is simply not good enough. We have a hard enough time coming to terms with their illness and eventual decline without having to deal with everything else. I sometimes think if I just stepped back would someone have to step in but unfortunately the harsh reality is he would just die alone in his flat. 

  • Hi T

    This is so hard to hear. Just wish they was something we all could do.Bless you all for your heartfelt responses. At least we know we are not alone, keep strong everyone it far from easy , especially when you heart is breaking everyday waiting for the inevitable.