Worrying about the wait for elderly mum

My elderly mum has stage 3 grade 2 breast cancer ilc. It feel like we were pulling teeth to be told that. She was diagnosed in early October, and had to really fight to get her lumpectomy just after Christmas, they were scheduling it for mid Jan. We've been waiting to get an appointment with the nurse and surgeon, and called and are seeing them a month now after surgery. Mum feels, and so do I now, that they don't care about her because she's old, but she deserves a chance and she wants one. She's had a hard life, but she loves her life now. Is this really not treatable?why are they being like this. She's so lovely. I know they're busy, but I think it's because she's just an older woman who has had her life to them. She's only 76 though.

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  • Hi Motherwell 

    Welcome to the forum. You must be very worried about your mum and the need to be seen as a priority is uppermost in your mind, which is perfectly normal.

    Unfortunately the NHS is running on empty and this is having an impact on all areas. I had to wait 4 months for breast cancer surgery, and another 5 months before I started radiotherapy. 

    So I think your mum's surgery was quick, it also takes time to get the pathogy back from the lab, so waiting a month is not too long either, especially when a multidisciplinary team meeting will be required before meeting with your mum. 

    I would try and change the narrative for your mum as she needs to believe that the cancer specialists have her back, it won't help her to think they have written her off, I personally don't believe they have. 

    Everything will come into focus in the next meeting as a treatment plan will be discussed,with decisions having to be made. 

    Best wishes x

  • Thank you so much for your trouble in responding to this. You're right, I will try to challenge her belief, as she's been very depressed, and it's obviously not helping to see them all as the enemy. Thanks for your advice. I hope you're o.k.,  you're obviously going through it yourself, take care. Best wishes to you, and thanks again for your response.

  • Hi, I'm doing fine, unfortunately mental health services are not there for many with cancer. My advice is to search for support for both you and your mother. Thankfully the charity sector has lots of help available and would be a good idea if you could get in touch with them ASAP.

    I sought help from Maggies (advice) the Haven (counselling) and Macmillan (alternative therapy - reflexology, massages etc). I'm in Scotland so don't know what is available in other parts of the country. I know Breast Cancer Now has a "someone like me" scheme, I haven't used it but looks good. There are also charities that supply "gifts" 

    https://somethingtolookforwardto.org.uk/

    https://www.treatmentbag.co.uk/

    https://www.littlelifts.org.uk/get-a-box/

    These may help with mum's low mood. 

    You should, if you haven't already, make sure your mum is getting all the benefits she's entitled to, are you caring for your mum? If so make sure you're getting relevant benefits and support from carer's association and local authority e.g. Wet room, home adaptions etc. 

    We are always here to help you, don't be a stranger xx

Reply
  • Hi, I'm doing fine, unfortunately mental health services are not there for many with cancer. My advice is to search for support for both you and your mother. Thankfully the charity sector has lots of help available and would be a good idea if you could get in touch with them ASAP.

    I sought help from Maggies (advice) the Haven (counselling) and Macmillan (alternative therapy - reflexology, massages etc). I'm in Scotland so don't know what is available in other parts of the country. I know Breast Cancer Now has a "someone like me" scheme, I haven't used it but looks good. There are also charities that supply "gifts" 

    https://somethingtolookforwardto.org.uk/

    https://www.treatmentbag.co.uk/

    https://www.littlelifts.org.uk/get-a-box/

    These may help with mum's low mood. 

    You should, if you haven't already, make sure your mum is getting all the benefits she's entitled to, are you caring for your mum? If so make sure you're getting relevant benefits and support from carer's association and local authority e.g. Wet room, home adaptions etc. 

    We are always here to help you, don't be a stranger xx

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