Have stopped letrazole

I completed 5 sessions of radiotherapy a month ago. Had surgery (lumpectomy last November). Was told I would have a reaction 2 weeks after the radiotherapy. No reaction. At 4 weeks suddenly my ribcage very painful. Could not lay on either side in bed and even laid on my back very uncomfortable. Decided to stop the letrazole I had been taking for 4 months. Immediately the next day symptoms lessened then within a couple of days much improved. Stomach felt very sore. Gradually over next few days went away. Now have a sore left wrist with intermittent pain. Also various spots of pain in other parts of my body. Not sure if it was a reaction to the radiotherapy or a reaction to the letrazole or both. Staying off the letrazole and will see how I go. What do others think?

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  • Hi Valmugg,

    I decided not to take letrozole at all. I had grade 2 stage IDC in October 2021. No lymph node involvement. I used the NHS predict tool which you can Google. It gave a 2% additional benefit on top of surgery and radiotherapy, I already suffer from osteoarthritis in various joints, I definitely could do without making that worse! Quality of life is important as well as longevity. I'm 57 now, and hope I end up regretting my decision BUT I wrestled with it for ages and kept coming back to the same decision. I don't recommen the same decision for anyone else, you have to listen to your oncologist and make an informed decision. I would say though, that your sore ribs could be a bit of lymphedema after your radiotherapy. I have just had a bout of it again and that's after 18 months. Regular massage with moisturizer helps.

    All the best 

    Jane

     

     

  • I should have said I hope I DONT end up regretting my decision! 

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