Have stopped letrazole

I completed 5 sessions of radiotherapy a month ago. Had surgery (lumpectomy last November). Was told I would have a reaction 2 weeks after the radiotherapy. No reaction. At 4 weeks suddenly my ribcage very painful. Could not lay on either side in bed and even laid on my back very uncomfortable. Decided to stop the letrazole I had been taking for 4 months. Immediately the next day symptoms lessened then within a couple of days much improved. Stomach felt very sore. Gradually over next few days went away. Now have a sore left wrist with intermittent pain. Also various spots of pain in other parts of my body. Not sure if it was a reaction to the radiotherapy or a reaction to the letrazole or both. Staying off the letrazole and will see how I go. What do others think?

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  • Hello Valmugg,

    I am over 3 years past ending my treatment so further along the road than you. However I was prescribed Letrozole after completing the radiotherapy too but only took it for about 3 months and even then I did it intermittently. My body ached and my emotions fell flat. Within a couple of weeks I was a mess. That drug isn't for me!  

    However I would never recommend to anyone to follow my example. It DOES mean we are taking a bigger risk. A recurrence is more likely to happen. That's a fact. BUT  I want a quality life. I exercise a lot and eat sensibly (mostly!) Those things help too. My oncologist explained my particular risks and I decided that I was happy to go with that. I MAY come to regret it but so far I absolutely don't. I feel really well and strong and happy not to have a hormonal war going on inside me!!! 

    You don't mention your age which is quite an important factor I think. I am 70. Post-menopausal which is a help. If I had been 40 I suspect I would have taken Letrozole. It's hard to know of course but I think so.

    I guess we all have to make the decisions we feel comfortable making. I am happy without the hormonal treatment and cannot see me changing my mind on that. I hope you are at peace with your decision which ever way you finally go with it. 
    Stay well. 
    Kebbs x 
     

     

  • Thank you, Kebbs. I have really been stressed about this, and as you say I believe that it's because of the war going on with my hormones because of taking the letrazole. I am usually a very upbeat person and was, right from the diagnosis last September to waiting for the radiotherapy treatments. I started the letrazole in October and my mood has gone down since. I was shocked by how sore my ribs were and that I could not lay on them. Once I stopped the letrozole this gradually dissipated. I don't want to be like this and having to take other medication to combat the side effects. I have a friend who has never taken it and that was many years ago and she is fine. I will be 72 in September this year. I think I will be much happier without it. Thank you for replying. You have put my mind at rest.

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  • Thank you, Kebbs. I have really been stressed about this, and as you say I believe that it's because of the war going on with my hormones because of taking the letrazole. I am usually a very upbeat person and was, right from the diagnosis last September to waiting for the radiotherapy treatments. I started the letrazole in October and my mood has gone down since. I was shocked by how sore my ribs were and that I could not lay on them. Once I stopped the letrozole this gradually dissipated. I don't want to be like this and having to take other medication to combat the side effects. I have a friend who has never taken it and that was many years ago and she is fine. I will be 72 in September this year. I think I will be much happier without it. Thank you for replying. You have put my mind at rest.

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