Have stopped letrazole

I completed 5 sessions of radiotherapy a month ago. Had surgery (lumpectomy last November). Was told I would have a reaction 2 weeks after the radiotherapy. No reaction. At 4 weeks suddenly my ribcage very painful. Could not lay on either side in bed and even laid on my back very uncomfortable. Decided to stop the letrazole I had been taking for 4 months. Immediately the next day symptoms lessened then within a couple of days much improved. Stomach felt very sore. Gradually over next few days went away. Now have a sore left wrist with intermittent pain. Also various spots of pain in other parts of my body. Not sure if it was a reaction to the radiotherapy or a reaction to the letrazole or both. Staying off the letrazole and will see how I go. What do others think?

Parents
  •  

    Hi Valmugg,

    A very warm welcome to our forum.

    I agree with all that Kebb has said. However, you have not been taking the Letrozole for long and the side-effects usually settle down after a few months. The risk of stopping it will depend upon what type and stage your cancer is, as some are  more aggressive than others.

    I have had 2 bouts of breast cancer and had a lot of side-effects from both Tamoxifen and Letrozole. I even had to have both of my knees replaced as a result of taking Letrozole, but I did perservere with hormone therapy for 7 and a half years. Despite the problems that I've had with Letrozole, I would certainly do it again, as I don't relish another bout. I've had 13 years since diagnosis and still lead a busy and fulfilling life and for that, I am so grateful.

    It would certainly be worth discussing this with your breast care nurse or consultant, as there are other treatments which you might cope better with.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx 

Reply
  •  

    Hi Valmugg,

    A very warm welcome to our forum.

    I agree with all that Kebb has said. However, you have not been taking the Letrozole for long and the side-effects usually settle down after a few months. The risk of stopping it will depend upon what type and stage your cancer is, as some are  more aggressive than others.

    I have had 2 bouts of breast cancer and had a lot of side-effects from both Tamoxifen and Letrozole. I even had to have both of my knees replaced as a result of taking Letrozole, but I did perservere with hormone therapy for 7 and a half years. Despite the problems that I've had with Letrozole, I would certainly do it again, as I don't relish another bout. I've had 13 years since diagnosis and still lead a busy and fulfilling life and for that, I am so grateful.

    It would certainly be worth discussing this with your breast care nurse or consultant, as there are other treatments which you might cope better with.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx 

Children
  • Hi Jolamine. Thank you so much for responding to my post. I have I realise been a different person since taking the letrazole. Initially I didn't think that I was experiencing any side affects however I now realise that my usually upbeat mood has been gradually going downhill and the terrors about the future are not an emotional reaction to the end of treatments but are in fact my hormones being at war. Since making the decision to come off the letrazole I feel so much stronger. It will probably take some time for its affects to stop hence why I am experiencing some painful areas eg wrist. Hopefully this will gradually cease. My sister in law has been taking letrazole for about 18 months and has just had one of her knees replaced. We all have to do what we think is right for us because we are all different individuals. I was assessed as grade 2 Initially which after healing see orenzarifenergy.com and a change in diet see chrisbeatcancer.com meant that by the time I reached surgery last November the lump was classed as a grade 1. I had 3 positive lymph nodes so they took out all 17 to be on the safe side. I will keep you up to date on my progress and thanks again.

  •  

    Hi Valmugg,

    I am delighted to hear that you managed to make changes which reduced your cancer to a grade one instead of a 2 - well done! Do you know what type of breast cancer you had? I had problems with my mood on Letrozole too, but these were worse on Tamoxifen. I ended up taking a mild anti-depressant which helped this.

    I look forward to following your progress and hope that all goes well for you.

    Kind regards,

    Jolamine xx

  • Val mug 

    sorry to jump on thread o can't help on this as I take tanoxifen 

    but I read through your post but was I treated to find someone who used Oren Zarif and to no that it actually worked for you ? 
     

    love Lara ️

  • Hi Lara, did you use Oren Zarif? 

    thanks