My wife has been diagnosed with a glioblastoma brain tumour

Hi,

Three weeks today since I had to rush my beloved wife into hospital with suspected stroke. But it wasn't a stroke.

1 inch size tumour above her left ear and a small tumour in the kidney as well. Totally unconnected the doctors say.

So two primary tumours. The brain tumour is suspected grade 4 glioblastoma and it's aggressive and has spread in the brain.

She has recovered her speech and is almost back to her old self. Biopsy on the brain today went well. They're not bothering with the kidney at the moment.

I'm hoping this forum will give me a window on what to expect in the coming weeks or months. The surgeon has advised we're looking at life expectancy in months rather than years.

Parents
  • Hi, I am in exactly the same position , we took my mum into hospital 4 weeks ago, also thought she'd had a stroke as she had weakness to her left side and had been slightly forgetful, leaving the taps in and small things like that. An MRI showed a glioblastoma, so aggressive that she wasn't able to have any treatment, we decided to take her home as this was her wishes. She has deteriorated in the few weeks she has been home and now struggles to walk as she cannot lift her left leg, she doesn't speak much either, shrugs or nods her head, I know she knows what's happening and it breaks my heart to see her. My dad is looking after her but we will need help as he is struggling physically and mentally, I am fearful for what's to come. I hope you get the results and there is something they can do for your wife.

  • Hi,

    My wife's current status is down to the steroids they've prescribed and her fitness and determination.

    Before the biopsy, the experts said it was too dangerous to operate.

    We both trying in the meantime to keep active by going for walks and the brain by doing crosswords and discussing current events. My wife will be 62 in May and has always been fit and healthy except for injuries associated with her horse riding. 

    It really is like we're living a bad dream.

     

     

  •  

    Hi Nevada,

    You've no idea just how much I wish that it was a bad dream for you both!

    Kind regards,

    Jolamine 

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