Hi, I am in exactly the same position , we took my mum into hospital 4 weeks ago, also thought she'd had a stroke as she had weakness to her left side and had been slightly forgetful, leaving the taps in and small things like that. An MRI showed a glioblastoma, so aggressive that she wasn't able to have any treatment, we decided to take her home as this was her wishes. She has deteriorated in the few weeks she has been home and now struggles to walk as she cannot lift her left leg, she doesn't speak much either, shrugs or nods her head, I know she knows what's happening and it breaks my heart to see her. My dad is looking after her but we will need help as he is struggling physically and mentally, I am fearful for what's to come. I hope you get the results and there is something they can do for your wife.

Hi, I am in exactly the same position , we took my mum into hospital 4 weeks ago, also thought she'd had a stroke as she had weakness to her left side and had been slightly forgetful, leaving the taps in and small things like that. An MRI showed a glioblastoma, so aggressive that she wasn't able to have any treatment, we decided to take her home as this was her wishes. She has deteriorated in the few weeks she has been home and now struggles to walk as she cannot lift her left leg, she doesn't speak much either, shrugs or nods her head, I know she knows what's happening and it breaks my heart to see her. My dad is looking after her but we will need help as he is struggling physically and mentally, I am fearful for what's to come. I hope you get the results and there is something they can do for your wife.

Hi,

My wife's current status is down to the steroids they've prescribed and her fitness and determination.

Before the biopsy, the experts said it was too dangerous to operate.

We both trying in the meantime to keep active by going for walks and the brain by doing crosswords and discussing current events. My wife will be 62 in May and has always been fit and healthy except for injuries associated with her horse riding. 

It really is like we're living a bad dream.

Hi Nevada,

You've no idea just how much I wish that it was a bad dream for you both!

Kind regards,

Jolamine 

Hi Owen,

A very warm welcome to our forum. 

I am so sorry to hear that you are in a similar situation to Nevada. Have you spoken to your mum's care team, about arranging for her to have carers coming to her home? They can arrange a number of different things for her, as her needs change. You can have a hospital bed if needed, carers coming in to see to her personal needs (up to 4 times a day), build-up puddings an drinks if needed, visits from your practice and district nurse to see to her medication. You can even have someone to sit with her at night to give your dad a chance to sleep. 

I have been through this situation with my in-laws and it really is too much for one person to do on his own. I am surprised that the hospital didn't mention any of these services before they sent your mum home. She may also be entitled to additional benefits when her condition is terminal. Macmillan can help with this.

Please keep in touch and let us know how you all getting on. We are always here for you.

Kind regards,

Jolamine xx

I myself have sorted some night care out , the hospital went very good. She needs equipment that we are struggling to get as well, it is all like a bad dream and yes it is too much for one person to do 

My mum is also just on steroids, she can't get out for a walk and was also fit and healthy, took early retirement a month prior to diagnosis, she's 64 

Hi Owen24,

Really sorry to read about your mother's condition.

I suppose we've got all this to come in the weeks to follow.

MacMillan have been brilliant in obtaining us a Blue Badge and arranging the PIP benefit under the 1500 rule of urgency.

Please keep in touch and my thoughts are with you all.

Hi Owen,

The social work department should be able to sort this out. The other thing you could do is to contact the occupational health or physio department, as they could also sort out equipment.

Kind regards,

Jolamine xx