Hi Nevada,

A very warm welcome to our forum.

I am so sorry to hear this news, which I suspect has turned your life upside down. Has your wife had any symptoms leading up to this, or has it come totally out of the blue? I can understand that they are primarily concentrating on dealing with her brain lesion at present. Do they feel that she will be able to have any treatment? One good thing is that her speech has recovered and she is almost back to her old self. 

It is always an anxious wait for the biopsy results to come back, but I hope that you get the results soon.

Please keep in touch and let us know how it goes. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine,

The only indication was that recently she couldn't get a word out mid sentence which frustrated her. She blamed it on brain fog.

Then on Friday evening after doing a crossword, she just suddenly deteriorated.

Hi Nevada,

This must have come as quite a shock to you both when you had so little warning. Do you have family or friends who can support you both?  I nursed my mother who had secondary breast cancer, which spread to her brain, bones, lungs and liver, so I have a little experience of brain tumour. However, I have had 2 bouts of breast cancer and know more about this. How is your wife coping with her possible diagnosis?

There are a number of people on this forum with glioblastoma, so once you get your wife's biopsy results, you might find that you'll attract the attention of more brain tumour people, if you change your title to reflect this. 

Please feel free to ask any questions you have - there is always someone here who has experienced what you are going through.

Kind regards,

Jolamine 

Have tried editing but I cannot find out how to edit the title yet

Hi Lucie,

Thanks you for doing this.

Kind regards,

Jolamine xx

Hi Nevada, 

So sorry to hear about your wife's diagnosis. I've just come across [@owen24]‍'s thread on this page as I thought you might have a lot to say to one another at the moment. [@owen24]‍ 's mum has also been recently diagnosed with glioblastoma.

Best wishes, 

Lucie

Hi, I am in exactly the same position , we took my mum into hospital 4 weeks ago, also thought she'd had a stroke as she had weakness to her left side and had been slightly forgetful, leaving the taps in and small things like that. An MRI showed a glioblastoma, so aggressive that she wasn't able to have any treatment, we decided to take her home as this was her wishes. She has deteriorated in the few weeks she has been home and now struggles to walk as she cannot lift her left leg, she doesn't speak much either, shrugs or nods her head, I know she knows what's happening and it breaks my heart to see her. My dad is looking after her but we will need help as he is struggling physically and mentally, I am fearful for what's to come. I hope you get the results and there is something they can do for your wife.

Hi,

My wife's current status is down to the steroids they've prescribed and her fitness and determination.

Before the biopsy, the experts said it was too dangerous to operate.

We both trying in the meantime to keep active by going for walks and the brain by doing crosswords and discussing current events. My wife will be 62 in May and has always been fit and healthy except for injuries associated with her horse riding. 

It really is like we're living a bad dream.

Hi Nevada,

You've no idea just how much I wish that it was a bad dream for you both!

Kind regards,

Jolamine