Bewildered

Hi all, I am new here, I feel like a fraud reading these posts, I am potentially right at the beginning of a journey I don’t want to go down, 4 weeks ago I received a letter to say my recent smear test had high grade abnormal glandular cells, an urgent LLETZ was booked (which I was incredibly unprepared for) the doctor said the expectations are that the results will be pre cancer or will be cancer. I had a clear smear test 1 year ago but had to be re tested this year due to testing positive for HPV last year, so in a year I’ve gone from clear to high grade.

I am now waiting for the results, I haven’t told anyone other than my partner, I still have a huge smile on my face with my friends and family as I don’t want them to worry, but I know I need support and advice which is why I found this group.

I can’t stop my thoughts spiralling, I don’t know the results and am just waiting for that call/letter so rather than thinking dark thoughts I want to be proactive, are there positive things I can do with nutrition and lifestyle, or just in general.

Any advice given would be greatly appreciated

Thank you for taking the time to read

  • Hi Lily, so sorry to read you're going through this.

    I know it may sound odd, but for me this period of waiting for tests/results was the Hardest part. No matter what the results of your tests are - the anxiety and stress of it all is difficult and I empathise with you.

    best advice would be to do what you enjoy. Whatever it is just go ahead and do things with your partner that can attempt to keep your mind occupied (it is very difficult)

     

    and consider talking to your friends/family too - no need to put on a brave face they're there for you and may help to relieve some of the anxiety and stress you're going through. You don't need to put on a brave face for loved ones - lean on them for some support

     

    all the best

    sean - stage 3 cancer survivor

  • Hi Lily,

    I am sorry you are going through this but I am glad you are being proactive in taking care of your health. Take it one day, one appointment, one result at a time. HPV is pretty common, I had it, too. I was told to build up my immune system as best I could, take vitamins, get rest, etc. Also, if you smoke, quit! 

    Keep me posted on how things progress for you.

    Laura xx

  • I am on day 11 of urgent referral 

    I use nicotine lozenges 

    I am really stuck on them... you said stop smoking do you think I should stop these too? I am also in bits but can't let my son know he's just lost his dad. 
     

    this is hell. My hospital said no garuntee of being seen in 2 weeks. 
     

    sorry so negative today x

  • Thank you for your reply, this is the third year I've been told I had HPV, my body doesn't seem to be shifting it. And now, high grade abnormal glandular cells, fingers crossed the LLETZ removed everything

  • Thank you for taking the time to reply to my post, I am sure there are a lot of hard parts to this journey but I got to admit being in the dark waiting for results really sucks! 
     

    I will most certainly let my family and friends know when I get the results but I think they would just feed my anxiety right now, I may be wrong but it makes sense at the minute ‍♀️ 

     

    Tough times 

     

    I am so happy to read you are a survivor

  • I am sorry you are feeling so negative, I hope you get the answers you need soon

  • Hi Little Fluffy,

    I'm not a doctor but I'd say you probably don't need to quit the lozenges, especially if they help you not smoke. As far as the days of waiting, my non-medical opinion is that a few weeks or even a month won't make that much difference in outcome. I hadn't been to a doctor in over 15 years when I was diagnosed with stage 2A cervical cancer. That was 10 years ago. Everyone's situation is different, but I'd try to stop worrying about the timing, stay off google and just try your best to be as healthy as you can be.  
     

    Good luck to you and keep us posted on how you are doing!

    Laura xx

  • Hi Lily, 

    Everyone is different and some people don't clear the virus (so I've read). Maybe ask you doctor for some strategies to help. I think that we are all at risk of picking HPV up if we are sexually active, maybe even passing it back and forth with our partner (?). Ask the doctor to be sure. 

    Laura xx

  • Yeah my understanding is that 80% of us have the virus at one time or another, I only became aware when they changed the ways they do smear tests. 
     

    From what I've been told there is no way to get rid of the virus, we just have to wait for our bodies to deal with it.

     

    in the meantime I need to wait on the results of the LLETZ