Hello, I am new here and feeling very afraid

Hello, I have just joined. I have been very unwell for the last two months and have just found out that my kidney cancer has returned after 13 years. It began in 2002 when I had my left kidney removed by radical nephrectomy. I was stage 4 but my cancer was slow growing and did not return till 2005. Then it appeared in both my lungs. I had two more open surgeries for lung resections. I was then OK till 2009 when it came back again and I had another open surgery lung resection.  Over the years my oncologist has often called me a miracle and I have been so grateful to my two amazing surgeons and oncologists.  Suddenly my world has collapsed around me again as it has been found in my small bowel. The worst thing for me was telling my family who have been so wonderful. I am trying to be strong but it has been such a shock to realise it has still been there all this time. I am frightened and really feel in need of being able to talk about it with others who understand how I feel.  If you have time to reply I would be very grateful.

  • Hi welcome to the forum the club nobody wants to join, you can rant all you like with no complaints from us or just talk to others who will join you soon hopefully, some of the ladies need their beauty sleep and makeup on. 

    Im different to you with my cancer i was diagnosed feb 2016 don't know how long had it before as felt well and fit. Im classed as palative care, prostate cancer gone to lymph node's pelvis spine ribs and a lung. Having permanent treatment just changes now and again when i get bitten by my uninvited guest, managing ok keeping going and doing caring for my darling wife who has dementia and other problems. 

    Hope others will join soon. 

    Billy 

  • Hello Billy, thanks so much for your reply. Your words help me a lot because I know I have to come to terms with living with the "uninvited guest" now instead of daring to allow myself to believe I might have beaten it. Just reaching out to remind myself that there are so many others living with it helps, so thank you so much for taking the time to reply to me. I hope you are feeling as best you can at the moment.

    Lynda

  • Hi I've been thinking about [@mare]‍ ,she's on quite regular helping out, I'll let her tell you about herself  , after all two ladies talking can take ages so I'll relax and have a sleep .

    Try to keep positive and sure. 

    Billy 

  •  

    Hi Nancylo,

    A very warm welcome to our forum.

    I am so sorry to hear about this latest diagnosis. It sounds as if you have had quite a journey so far and it will take some time for you to come to terms with this bombshell. Our Billy is a living legend amongst us ladies and his determination and wry sense of humour keep us all going at times.

    I see that he has mentioned talking to .@mare, who has had a similar experience and is always willing to help out. There are a number of other ladies who also find themselves in this unenviable position and, I hope that some of them will be along to talk with you soon.

    Please keep in touch with us and remember that we are always here for you.

    Kind regards,

    Jolamine xx

  • Hello Nancylo,

    I'm often around for a chat. I get some notifications on my phone so can usually respond pretty quickly.

    Living with Stage four stuff can be rubbish can't  it. But, as far as I can see, there are more people out there living with stage 4 than there used to be. People like you, and me, and Billy. That thought brings me some comfort.

    I totally agree that it is often very comforting to share our feelings with people who really understand. My family don't understand- and I wouldn't want them to either. If they did it would mean they've walked in my shoes, and I would not wish that on anyone!

     All I can see from your post here shows me what a hard grafter you are. What a fabulous survivor you are. You have done it before and, with the help of your medical team, you'll just have to do it again!

    Feel free to add me as a friend on here as it's sometimes nice to talk about some stuff privately isn't it.

    Huge hugs,

    From Mary

    xxxxx

    P.S. Thanks Billy. You're a pal :) x

  • Hello Mary

    Thank you so much for your kind reply.  I can see we are quite similar in other happier ways as well as I am also a mum, grandma and retired teacher.  My grandchildren came along just after I had to retire because of my cancer and they filled my life with joy and new purpose.  They are growing up now - nearly 17, 14 and 12.  I started my chemo Sunitrib last night so wondering how long side effects take to set in.  I am gradually taking it all in once more and as I said to my family, I am putting on my armour again.  Like you just said I have done it before and with the doctors, I am going to believe I can do it again.

    I would love to add you as a friend Mary, thank you.  I am not quite sure how to do it...would it be possible for you to add me or to just tell me how.

    Thank you so much again,

     

    Love Nancylo x

  • Hello Jolamine

     

    Thank you too for your kind reply.  It is so comforting to have received these lovely replies and you also really help me by saying there are several on here in the same situation although of course I wish none of us were.  Yes I think because it has been such a long time since the last bout, I had dared to allow myself to think I had beaten it and that is the biggest obstacle to get over.  Well not quite, telling my kids, (although they are well grown up) was the worst.  The distress this causes them all and of course my husband and my beautiful grandchildren is so painful.

    I started the chemo last night so I feel I am "on my way" in this new fight and I am so thankful for the friendship and support on here which is already helping me.  Thank you so much.

    Love Nancylo x

  • I have sent you a friend request. You will find it in your friends list :)

    Crossing fingers for the chemo not to be too bad on you, but for it to completely obliterate the cancer!

    Take good care of yourself,

    Mary

    Xxxx

  • Hi Nancylo,

    I am so glad to hear that you have started your chemo and hope that it gets rid of the cancer. You will find the support on this forunm is a great support. I see that mare has already replied to you and, I'm suere that you will greatly value her input. 

    I agree that it is devastating to believe that you had beaten cancer, only to find that you still have hurdles to jump. I found this difficult with my second cancer and, although I am so fortunate, I find it difficult to accept that I am now totally clear. 

    Please remember that we are all here for you and willing your cancer treatment to work.

    Kind regards,

    Jolamine xx

     

  • Really glad you have some replies from the ladies, and your chemotherapy is started, try to keep sure and positive, most think it helps alot. 

    Billy