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Vulva cancer - happy to help anyone on this journey

ClareB43
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Hi.

5 years ago at 43 I was diagnosed with stage 3 vulval cancer. 
My cancer was caused by a skin condition called Lichen Sclerosus of which I was misdiagnosed for 38 years. I have had 4 surgery's and radiotherapy twice and now am  4 years in remission so if I can help anyone with tips during treatment or just a chat then please message me.

I started raising awareness of both these rare conditions as they seem to get much less awareness and is often why we misdiagnosed or diagnosed  late as nurses are not trained in vulval conditions so are missed during vulval checks and smear tests. 

It's hard enough getting a cancer diagnosis but one that's rare and embarrassing makes it a more lonely place. 
ClareB43 

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    Hi Claire,

    This is my first post, so thank you for your post it's given me the courage I needed. It is also good to read a clearly unique, however positive, post.

    I was diagnosed with LS 11 years ago and diagnosed with stage 3 Vulvar Cancer Nov. 2023. I have had surgery and am currently having chemo and radiotherapy together. All are going well, not without side effects, but with support, I'm getting there. 

    It's every day so exhausted but staying positive helps me. I do really struggle with every bit of bad news as I'm so positive it feels like a new shock every time. I wonder if anyone else feels like this or has any tips on how to manage the balance of mind set but preparing yourself?

    I also feel very passionate about raising awareness of both conditions. For a million reasons.

    Xxx

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    Hi Claire,

    This is my first post, so thank you for your post it's given me the courage I needed. It is also good to read a clearly unique, however positive, post.

    I was diagnosed with LS 11 years ago and diagnosed with stage 3 Vulvar Cancer Nov. 2023. I have had surgery and am currently having chemo and radiotherapy together. All are going well, not without side effects, but with support, I'm getting there. 

    It's every day so exhausted but staying positive helps me. I do really struggle with every bit of bad news as I'm so positive it feels like a new shock every time. I wonder if anyone else feels like this or has any tips on how to manage the balance of mind set but preparing yourself?

    I also feel very passionate about raising awareness of both conditions. For a million reasons.

    Xxx

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