Hi Clare

I was diagnosed with Vulva cancer in October last year. I had a total vulvectomy in February and a sentinel lymph node biopsy which showed that the cancer had spread so I had my lymph nodes removed from both sides of my groin at the end of April.

I start radiotherapy in June and I was wondering if you could let me know what usually happens at the first appointment? Do you find out how much radiotherapy you need?

Thanks in advance.

X

Hi there 

Your first is the planing one , so they scan you (normally need a full bladder) and see where they need to aim the radiation and put tiny tattoo dots in 3 places, both outsides of thigh and one in the middle of mons pubis (where hair is) so that each time they do the radiation they line you up so get  it in the exact place each time.(could be on a slightly different places)

They will explain everything to you and what happens and go through all the side effects and what they can do to help during this time.

Normally it's 25 radiotherapy treatments , Monday to Friday over 5 weeks. 

Clare 

Thanks so much for your reply. That's really helpful. X 

Anytime , message me if have more questions.

Hi Clare

I hope you will be able to give you some advice I had vulval cancer 6 yrs ago recovery was very good thank goodness.  Lately I am getting an awful burning sensation around the vulva area I have not had this for months but suddenly flared up again, I wonder have you any suggestions that I could try to alleviate this problem.

thank you in anticipation 

Hi Clare

I hope you will be able to give you some advice I had vulval cancer 6 yrs ago recovery was very good thank goodness.  Lately I am getting an awful burning sensation around the vulva area I have not had this for months but suddenly flared up again, I wonder have you any suggestions that I could try to alleviate this problem.

thank you in anticipation