Hi.
5 years ago at 43 I was diagnosed with stage 3 vulval cancer.
My cancer was caused by a skin condition called Lichen Sclerosus of which I was misdiagnosed for 38 years. I have had 4 surgery's and radiotherapy twice and now am 4 years in remission so if I can help anyone with tips during treatment or just a chat then please message me.
I started raising awareness of both these rare conditions as they seem to get much less awareness and is often why we misdiagnosed or diagnosed late as nurses are not trained in vulval conditions so are missed during vulval checks and smear tests.
It's hard enough getting a cancer diagnosis but one that's rare and embarrassing makes it a more lonely place.
ClareB43
