Dad terminally ill

Good evening,

I am looking for anyone to speak to. My dad was diagnosed of rectal cancer back in April which has spread to his liver, bones and abdomen. He battled with his surgery for 4 months saying something wasn't right along with all the issues he was having and it took 4 months for the Dr to send him for a scan when he was then diagnosed. He was unable to have chemo due to a faulty gene and it was 70% risk of making him really unwell or worse. That has now gone down to 50% and he was offered chemo. Unfortunately he took a turn for the worse and has now been given weeks/short months to live. With a letter saying had this have been picked up earlier and they started chemo early on we would likely be looking at a different story. I am absolutely distraught and really feel he has been let down by the his surgery and Drs this is not something I say lightly working for the NHS myself. I am sure my anger is part of the emotions I am going through. My heart just breaks for him, he is only 59 and I pray he is one of the lucky ones. 

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  • Sorry to hear your news, my Dads story is similar.

    My Dad was cured of prostate cancer and signed off.

    Then he started to suffer terrible headaches and then found out his kidney function had halved in two months. Instead of being sent for an urgent scan he was put down for a none urgent scan and given blood pressure tablets.

    when symptoms continued he was eventually sent for the scan where they found out eventually that he had uterer cancer that had now spread to the bladder.

    The kidney was damaged beyond repair so he had kidney removed, uterer and 20% of bladder removed in October last year. 
    He didn't see anyone until Jan 5th the surgeon who was really pleased with his work and was super confident he wouldn't need anymore treatment. Unfortunately results weren't back so couldn't say 100% but at same time really positive.

    24 hours later Surgeon rang with results and it was terminal. It has spread to the Lymph and the Vas. 
    My Dad is going in today to see the oncologist but I can see a difference in him already.

    All this could of been different if the GP had sent him for the urgent scan, we've been told by so many people at the hospitals that the fact his levels had dropped by half in a month or so was a red flag for a serious issue. 
     

    My Dad is now facing end of life and since March last year we've hardly ever know where we are with it all. We get told some awful news and are then left to guess what's next until the next meeting sometimes months away. 
     

    I feel angry and I have a right to be, he's only 64 we've been let down. Where surgery was needed it's been brilliant and swift so we've been lucky that way. But the care around it has been pretty none existent.

    I totally understand how you feel and I don't think anyone should tell you otherwise. We can only try and not let it consume us as we need to be there for our families. 
     

    We are all like pressure cookers and we need to vent or we'll burst. I lost two friends within months of each other a few years ago and I didn't let my emotions out.

    I eventually ended up suffering with anxiety and was quite bad with it for sometime simply because I bottled things up. So be angry, be sad, try and be as positive as possible but don't ever keep everything bottled up. 
     

    So sorry you are going through this and I hope everything goes as well as it can during this difficult time.

     

  • Hello Son1975,

    Thank you for your reply. Unfortunately my Dad lost his battle on the 1st December the only comfort I can find at the moment is knowing he is now way from the suffering and I got to spend the day with him before. I miss him so much and it is little things like settling in the evening and thinking oh ok give Dad a quick call. 
     

    I m so sorry to read about your father. You feel so let down don't you as well as dealing with all your other emotions on top. I really hope things turn around for your father and you get some good news.

    Best Wishes.

Reply
  • Hello Son1975,

    Thank you for your reply. Unfortunately my Dad lost his battle on the 1st December the only comfort I can find at the moment is knowing he is now way from the suffering and I got to spend the day with him before. I miss him so much and it is little things like settling in the evening and thinking oh ok give Dad a quick call. 
     

    I m so sorry to read about your father. You feel so let down don't you as well as dealing with all your other emotions on top. I really hope things turn around for your father and you get some good news.

    Best Wishes.

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