Mum has terminal lung cancer

Hi everyone, this is my first post here. Not something I wanted to do but this is where I am. My mum was diagnosed with Lung Cancer back in January. She has always been super fit before that. The only sig. We had was she coughed up a little blood and then things snowballed from there. It turned out she had Metastatic Kidney Cancer and now Some small tumours in the brain. She has been managing ok but things seem to be getting worse. She had Srs radiotherapy for her brain mets and that seemed to go ok. We are about 1 and a half weeks later now and she is really struggling. Constantly tired and struggling to get around like she did. She says she's constantly tired and has a lot of aching on her right hand side.

She's not in any pain now we got the medication sorted but I'm constantly worried. I'm hoping she will pick back up again. She had a patch before where she was constantly tired and she came back round to be more active. I'm worried out of my mind that she will keep declining. Could this tiredness be down to the brain radiotherapy. She seemed ok when she had it but she was on steroids. The doctor said 6-9 months then 9-12 if they can get control of the cancer. She is supposed to be having radiotherapy for her lung but I'm not sure what will happen with her feeling weaker. She wasn't so bad only a few days ago and now she is very tired again. I just don't know how to cope with losing my mum. She's my life and I will be lost without her. I've been living with her at home for the past 18 years due to my own illness. We are so close and it feels like my world is falling apart. I know other people go through this but I am struggling. This is the hardest thing I will ever have to do. Muly mum is 65, she still feels so young to me. Thank you for reading. 

  • Hi Jolamine, I hope you are well. Sorry for the late reply. My dad has been doing ok thank you. He has been tired but has been lucky so far with not too many symptoms. Thank you Jolamine, It will be a while before we find out but hopefully it's good news.

    Ah that's good, I'm glad you have finally had some nice weather. It was pretty awful last week, far too hot. Once it gets past 30 it's getting too hot for me! How is your husband doing Jolamine, I hope he's feeling a little better. You said he has a appointment at the end of the month didn't you, I hope that goes well. You take care Jolamine. x

    Simon

  • Hi Simon,

    I'm delighted to hear that your Dad is doing ok. It is great to hear that he hasn't got too many side-effects, apart from the tiredness. It's now an anxious wait to find out how successful his treatment has been.  As you say, this may take a while but let's hope that it will be good news.

    The highest temperature we reached here was 34º, so nothing like the temperatures that you've been having - and this only lasted for one day. Hubby is still not doing well. The heart failure nurse came out to see him when his blood pressure was so low. She was very thorough. She took his blood pressure, discovered that he has an irregular heart beat, took various blood tests and phoned to tell me the results the following day. She said that she would arrange another ECG for him. She then advised him to reduce one of his tablets and said that she would phone back the following week to see how he was coping. Unfortunately, she never phoned back.

    I haven't phoned her back, because he has an appointment with the heart failure nurse at the hospital tomorrow, so we'll see what she has to say tomorrow.

    Look after yourself Simon.

    Regards,

    Jolamine xx

  • Hi Jolamine, how are you. Yes he is doing ok so far, just fingers crossed now for when he gets the results. I believe they will be in contact next month so we still have a little wait. I'm so sorry to hear your husband is having these problems. How did the appointment go? My dad has an irregular heart beat, he has had heart disease for a while though. I know there is a medication he takes so they can get it under control. Hopefully they can find out what's going on with you husband and try to help. I know it must be stressful for you. It's frustrating isn't it when someone   doesn't ring back, I know they are busy but it does leave you in limbo not knowing what to do. 

    I'm glad you did finally get some nice weather! It's been ok here, not a lot of rain which is about as good as we can ask for! I hope the weather has been good for you too. I hope you are managing ok Jolamine. I wish your husband all the best and hope they can help him feel better. You take care of yourself Jolamine. x

    Simon

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    Hi Simon,

    Sorry for the delay in replying. I have been away with the family for a few days. It was lovely to catch up with my granddaughters, who have matured so much in the past year - it's sad to see them growing up so quickly!

    I am delighted to hear that your dad is doing ok so far, although it will be an anxious wait to see  what his results are. Hubby has had heart trouble for the past 26 years. He first had stents inserted, but they didn't work and he had a quadruple by-pass 26 years ago. He also has diabetes, vascular dementia and vascular Parkinson's, so he is on a lot of medication. His legs were getting very swollen, so his medical team added a new tablet, which seems to have reduced the swelling, but is causing all sorts of additonal symptoms. They have adjusted the doseage of two of his other tablets, but so far, this has just raised other problems. We were back at the hospital just before we went away and saw the heart failure nurse again. She has adjusted his meds again and arranged for him to have an ECG there and then, as he still has an irregular heart beat. We'll see her again shortly.

    I am hoping and praying that you get good news when you get the results back.

    Regards,

    Jolamine xx

  • Hi Jolamine, Ah that's nice. I hope you had a good time! Yeah time does go so fast, my sister has 3 sons and everytime I see them they seem to have got a lot bigger! It must have been nice to spend some time with them. He is thank you, I'm sorry to hear that. It sounds like he is having a tough time. That's good that they have managed to control it, I know by-passes are very serious. My dad has heart disease so I do know a little about it. He's also diabetic too which always makes everything difficult. Changing a medication or anything like that is always a big deal. It sounds like they are trying to get your husbands medication just right. I'm sure they will get there but I know that's no consolation for you or him if he is struggling now. I hope he does improve and if not when you do back to see them again they can help. I know it must be very frustrating for you. 
     

    Thank you so much Jolamine, I hope your husband starts feeling better soon. You take care. x

    Simon

  •  

    Hi Simon,

    We are still struggling with my hubby's medication, but hopefully we'll get there eventually - you know what it's like. It doesn't take much to throw the Diabetes, Parkinsons' and other problems out of sync too. What ages are your nephews? They must surely be an interest for you.

    I hope that your dad is continuing to feel well and that the tiredness is lessening.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, I'm so sorry to hear your husband is still struggling. Hopefully they can sort it out. I do understand how hard it is. It is a delicate balancing act when so many medications are already being taken. My dad is just the same, they don't want to do anything that might affect the medication he is already on. He is doing ok thanks, his appointment is next month so we may doing out something more then.

    Yes my nephews are 14,12 and 11. I must admit I don't see them that much, they are always busy or stuck on their computers! It is always nice to see them when I can though! They also have 2 dogs which I love to see. I do want a dog at some point but I know it's an added responsibility and not the best time at the moment. I hope your husband is feeling a little better Jolamine. You take care. x

    Simon

  •  

    Hi Simon,

    Sorry for the delay in replying. It has been a particularly busy spell. We are still struggling with hubby's health. We are still struggling with changes of medication, but haven't reached the optimum situation as yet. We managed to catch up with the family for a few days at the beginning of August, which was lovely. We saw a big change in our grandchildren. They are now 11 and 15, so like your nepnews, they are always busy with something or other. Now, we're busy planning our trip to Italy, which is only 2 weeks away. 

    A dog would be great, but it is a big responsibility. They are great company, but you'll know when the time is right to get one. 

    I am glad to hear that your dad is keeping ok. He should soon be getting his appointment through for this month and, I do hope that he gets some good news. Please let us know how he gets on.

    I hope that all is well with you.

    Regards,

    Jolamine xx

  • Hi , 

    So sorry for what you ate going through ! i am going through it with my Dad sthe hardest thing I have ever gone through ! Cancer is so evil ! 

    My Dad ened up in Hospital last Monday so weak could hardly get of the sofa....heartbreaking he left like a diffrent man ! His pottasium was low so the gave hin an infusion , bloods also showed he had an infection so he was given antibiotics and started back on his steriods .

    Do not assume its your Mum's cancer worsening ! ask for bloods if not had recently and maybe some steriods to boost her , if people say no ask why ? 

    If she is not eating much little and often and high calorie / high fat , try fortisps / forti juice / complan etc .

    Sending love and hugs 

    xxxxxxxxxx

  • Hi Jolamine, sorry hope you are well. I'm sorry to hear that. I hope you have managed to get his medication under control. I know how hard that can be. That sounds nice, I bet it was good to see them. Yeah they really do grow fast, everytime you visit them they seem to have shot up even more! I'm sure your grandchildren are the same, they do grow so quickly.
    That sounds really nice, I hope you have a good trip. I'm guessing you will be going in the next few days. Have a great time Jolamine!

    Yes definitely, I would love a dog but know the responsibility it brings. As you said I will know when the time is right. My dad received the letter and his appointment isn't till December so there's quite a bit of a wait yet. I will of course let you know when I hear anything. Thank you Jolamine, you enjoy your trip and take care. x

    Simon