Weeks not months

Good morning

I can't even begin process the last few weeks 

My mum got taken to hospital with an infection 19th February. They said it was sepsis. after more scans the next day we had the devastating news that they discovered she has bowel cancer that has also spread to her liver.

4 days later whilst she was in hospital she had a stroke.

Covid has meant a huge restriction on visiting. Where dad was only allowed on for an hour a day. 

We were informed she had agreed to a DNR

A few day later they said they could not over any treatment for the cancer as mums body would not handle it. 

My dad was called in to the hospital for a meeting with mum.....  Nothing more they can do.  The doctor said he thinks weeks not months

Someone in the ward then tested positive for covid resulting in mum and dad both having to isolate for 10 days

Mum is now home. And I pleased as its what she wanted. 

I'm just really struggling to process this.  We are already 2 weeks in to "weeks not months" I don't know how close we are to the end.  Everyday I wake up knowing it's a day closer to losing mum.

She turns 60 a week today 

 

* Mum passed away this morning (7th April)at 3.47 

The last few days have been horrendous and my heart is broken x

  • I'm so happy she got to spend her birthday at home with your Dad. I'm sure that made her really happy. Its also good that your Dad is having support with the caring side, because that can be quite tricky sometimes emtionally, and also because he doesn't have a full understanding of what she needs at any given time, and their job is just purely to make your mum as comfortable as possible. 

    its good that you're able to see her when you can, you genuinely will cherish this even though its so heartbreaking to see your mum unwell. 

    Is your mum on medication, or strong pain relief? The carers at the hospice said that this was adding to my mums confusion - she often said to me that she didn't understand where she was, or why she was there which absolutely broke my heart every single time. But then other times, she was very pragmatic and told me she was very aware that she was approaching her last days and just sat and held my hand. Both are really difficult to deal with. 

    I think the natural reaction for you, as you love your mum so much is not want to see her prolonged pain so please do not feel guity for this. I think it will be very much a common feeling for those of us on this forum who have experienced seeing someone suffering from such a cruel diagnosis. I guess its just really important to feel every single thing you're feeling, even if you think its a weird emotion, if that makes any sense?! 

    I am doing okay, some hours are definately much harder than others, and I am still at the part where i am very much up and down, and the slightest thing like a smell triggers me into crying. My days usually involve a lot of very deep breaths when I feel overwhelmed, and just focussing on the fact I actually got to say everything I needed/wanted to say to her after her diagnosis in person, rather than on the phone. Unfortunately, we have a huge wait until my mums funeral, she passed away on the 4th March, and her service is on the 8th April, I do not think that has helped but given everything going on, unfortunately its just how it is for so many grieving families. 

    XXX

  • I can't imagine how u feel right now. I am so sorry. 

    I'm right there with u with the ups and downs though. I feel I take a lot of deep breaths at the mo. Tears just keep coming without warning from no where. But then I guess it's constantly on our minds. 

    She is on 2 types morphine. And a few others which are for clotting and toilet movements I think. 

    She was given a big boost of antibiotics in the hosp to get her home. But the tablet ones stopped a couple of days ago. So maybe it's held the infection at bay for now.

    In some ways she seems better, she doesn't seem as in much pain which is brilliant, and her speech is improving from the stroke.  But her thighs, tummy and arm have swollen. And she gets really slurry and bit confused in the evening. 

    She is pretty much bed bound other then going to the commode next to her. But every other day she will want to walk to the living room. Coz she says she doesn't want to lose mobility. But it really takes it out of her. She has to stop many times and watching her really struggling to breathe. I can't help but just want her to stay in bed . But I know she needs to have these little Victorys herself. 

    It's all so confusing.  As brutal as it sounds. I just think if she is walking and talking and eating. It's not today.... Does that make sense..? 

    I don't think any of it makes sense at the moment.

     

    That is a long time to wait for Ur mum's funeral. That can't be easy. Just take a day as comes. I'm sure theyl be up and downs. There's no wrong or right x

     

  • That is brilliant she isn't in as much pain, at least she is comfortable. most important thing for her at the moment. 

    I love your mums spirit, and that she wants to still get up and go to the living room but i can see why it that is very destressing for you to see how much it is taking it out of her. 

    I agree with you, and it makes a lot of sense that you feel that way. I think the hard thing with doctors giving timescales is that sometimes they are just not accurate, because each case is just so different, and you can end up mentally checking off the days in your mind. I know that i did that with my mum and I had to tell myself to just stop and enjoy the moments that I could. That is very, very unbelievably difficult though. 

    I genuinely have so much sympathy for you, and I think your advice to me is perfect. You just sadly have to take each day as it comes, plenty of deep breaths, and remember to take care of yourself too. That is really important and definately what your mum would want for you. 

    XXX

  • Hi Lmmrose.im too waiting .had urgent referral to pancreatic and bowel cancer unit, should be seen with in two weeks.

    I'm know im in  a serious way and the symptoms are getting worse .

    Hope all is well fir you.

  • Hi, aw bless her, glad she was able to see her 60th. Such a cruel world we live in and seeing our most precious people going through what they are. I get how you feel, I'm feeling the exact same way at the minute. My mum is in a very similar way to yours very tired etc. I hate the fact that we're just waiting, and seeing her suffering, she is in so much pain still. Mum is in week 2 of weeks.  Make sure you are eating and drinking well to keep your strength up. Xx