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Caring for partner withterminal brain tumour

Tillybisto
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Hi

My partner was diagnosed with a brain tumour 2 weeks ago, he had a biopsy that bled and he's now come home. We were told there's nothing that can be done as the tumour is stage 4 and has spread. I feel angry we had the biopsy as it seems to have speeded up the process of his decline. 

We are trying to enjoy our last weeks or months together- we don't know how long.

I wanted to ask how people talk about end of life or there being no treatment with their loved ones? He forgets things and tends to have to re-hear everything as he forgets what's been said.  I don't want him to have to relive the news that the cancer is untreatable again and again but at the same time don't want to pretend that treatment is coming.

He asked tonight what the next steps are and I don't know what to say. 

Any advice welcome.

Thanks 

  • Offline in reply to IHateCancer1988

    Thank you x

    Very sorry to hear about your mum that must be awful. 

    Sending big hugs xx

  • Offline in reply to Tillybisto

    Hi tilly he can live without food for days or even couple of weeks depending on how big he is water or drinks is the main thing has he got favourite things he likes.. do something your self and eat it near him see if you can tempt him. Try his favourite drink. Yourself. 

    Brenda my wife doesn't always want to eat so i do as i said above. It doesn't always work, same with drinking.. Hopefully you'll change his mind as he gets more usto what is happening to him..

    Remember to look after yourself as well. 

    Billy

    P.s years a i started being sick with any thing i ate or drank i was like it for a full week granddaughter took me to A&E i didn't realise what i was like, I'd lost two stone in that week. And was very dehydrated., remember that's not eating or drinking anything and bringing up what was inside me as well..I'm still here and kicking.

    It turned out to be a hiatus hernia. 

  • Offline in reply to Tillybisto

    I'm glad he seems to be more comprehending of what is happening. It's a scary enough time without having a terminal cancer diagnosis to deal with too. We've just been trying to make the most of it. Trying to treasure every moment with my mum, no matter how small. I'm glad you'll have the support of a carer too as it's such a huge thing to go through alone. If you ever want to talk, please feel free to message me. 

  • Offline in reply to Orchid_

    Thanks Orchid I will keep in touch. 

    Hope you manage to spend some time with your mum over the Easter weekend. 

    X

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