Dad given two months to live.

Hi there, 

Im totally new here, I am just so upset right now and wondered if anyone had any advice. 

My dad got diagnosed with stage 4 lung cancer last week. It was a shock. He only went to hospital with a chest infection. He came home on Saturday, they were giving the antibiotics a chance to work and had booked him in for a biopsy on the 30th but this morning he rumg me and told me he didn't feel well and said he thought he may have to go back to hospital as he'd been coughing up blood for two hours. I got to my parents in ten minutes, planned on putting him in my car and driving him to A and E but he was in absolute agony. It was horrific. So I called an ambulance. Later on it turned out its spread to his liver and nymph things

and the consultant told dad he only had a couple of months left in him. Mums been crying all day my dad has just gone into a state of shock. I'm trying to blank it out for now because I have to be strong. 

So then they moved dad to a ward for the night. Mum was told she would be able to stay with him over night but when we got to the ward the nurse was pretty harsh and direct with my mum and told her she couldn't stay with him. She said she'd had three other people ask and the answer was no. I couldn't believe it. Her tone, her manner, it was absolutely awful. My poor mother. The nurse then said if she wanted to stay that much she could sit in the day room but only for one night until my dad "gets used to it". They asked me to leave as it was 11pm by the time he went to the ward and away from my mum before I left I explained (through tears) to the nurse that my dad had just been given two months to live and that my parents were terrified and gutted and dad didn't want mum to leave him. I also explained that mum has really bad anxiety and is very sensitive so can't deal with stress as well as most but I was so hurt and upset for my mum. It was a huge blow after the worst week of her life and she was crushed. I've left her now stuck in the day room all night and I just can't believe this is how it is. If mum can't be with dad he will give up straight away. He needs her. Especially tonight. I thought it was so cruel to not let them stay together and to speak to mum like that or am I being over sensitive and this is what it's like if you're terminally ill in hospital? Thanks so much. Sorry for going on. Xxxxxxx

Parents
  • Please make a formal complaint. 

    Nurse Ratchet has no place in the NHS.

    This nurse's behaviour is unacceptable and in breach of the NMC code of conduct . The first line of the Code states that nurses must  "Treat people as individuals and uphold their dignity To achieve this, you must treat people with kindness, respect and compassion."  

    www.nmc.org.uk/.../nmc-code.pdf

     

    Best wishes
    Dave

  • Hi, 

    Thank you so much for replying guys. 

    After I spoke with the nurse to explain before I left my parents mum said she was so lovely to them both and couldn't do enough to help even asking my mum if she wanted to stay longer etc... Mum had a complete and utter breakdown in the night. Called me at 2.30 am in a state I never want to see again but know I will again tonight. I feel like I watched my mums heart break right in front of me. 

    At the hospital today we had the same thing with dads nurse (a different one). She told me to leave as it wasn't visiting time and said only one person could sit with him so mum and I were taking it in turns to wait in the day room whilst one of us sat with him. When I went to leave I realised I'd left my jumper on his bed so popped back to get it and she told me again to leave. Dad got really upset and it messed up his breathing and he started coughing again, he swore under his breath at her he was so so upset. I decided I had to say something so I asked if I could talk about it with the nurse in charge. She was absolutely amazing. I cannot believe how one conversation with her has changed everything. She really listened to me when I explained about the shock diagnosis last week and the two months to live thing yesterday. I told her my parents need each other and being an only child they need me. I told her that the situation as it was was really upsetting my parents (and myself) and about mums anxiety. She gave me the biggest hug ever and made mum and I a cup of tea. She came and met my dad and had a lovely conversation with him. She's told the other nurse and now my parents can stay together (and I'm allowed to be there too) as long as we keep the curtains closed and stay in our little space. We are so happy about this!! I have been with my mum and dad all morning and have just popped home so dad can try to sleep for an hour. We have been sat together talking and I've made dad laugh so much. I am so grateful for your replies. I thought it was me being over sensitive and I just didn't know what to do. It's sorted out for us now but it hurt so much. It really really hurt and I hope if anyone else has this happen they will please try and talk to a ward manager or a nurse in charge because if I hadn't I wouldn't have had precious time with my dad today and I'm crying but it was just so lovely. 

    Thank you so much guys for replying and I'm sorry again for going on. I cannot believe this has happened and my dad is so ill. It was only two weeks ago my parents were running about with my twin girls. It's happened so quickly. 

    Thank you, I hope you guys are ok. Lots and lots of love. Xxxxxxxxxxxxxxxxxxxxxx

  • Hi, My heart goes out to you and i do know how you feel as i'm going through it with my Mum..I'm so glad you found an understanding nurse to sort things ..Nobody should face this sort of problem when someone is so ill...My thoughts are with you x

Reply Children
  • Hi there, 

    I'm so very sorry that you're going through it too. Thanks so much for your reply. I am so empty. I hope you're managing to cope ok, this is the most horrible nasty thing and Im really pushing myself to stay strong because this is hard. I can't think of any positives in this so far. Xxxxx

  • Hi, My heart goes out to you and your family. After reading your other posts it's heart breaking. It was lovely to hear that your Dad got to go in the wheelchair, I just hope things improve at the hospital..Don't know how you have managed to keep your cool cause i most certainly couldn't have. Our Parents deserve respect its not alot to ask in a situation like this...                                                                             My Mum is stage 4 lung cancer and they won't allow chemo but she didn't want it anyway and i respect that. I just feel like i'm on a roller coaster and can't get off but taking each day at a time. I have 1 Brother and 3 Sisters, I'm the youngest but deal with all apointments and phone calls as i seem to get the answers and understand alot after my Friend passed with the same thing.I don't stop till i get what i feel my Mum deserves ... Don't stop asking questions and if you feel you aren't getting the answers ask again and again, You are doing your Dad proud being strong and i hope he gets home soon ...

  • Hey! 

    I feel for you, this turns everything upside down and it's really difficult to navigate your way through it all while trying to do the best for your loved one. I've never experienced this before, I've never had anyone close to me have cancer so it's completely new. 

    My dad is home now. I stayed at the hospital all day Tuesday chasing up the oxygen. I think it finally arrived at my parents house at 5 or 6 pm. We had a quick demo and safety talk then I went and got dad with the portable oxygen and brought him home. I went to see him yesterday, he seems ok. He's actually looking really good now (apart from the weightloss, he was never this skinny) and mum did say it's like he's not ill again now, so weird. 

    I think we all just have to stay as positive as we can (even though that is so hard because of the obvious) stay nice and calm and as rested as possible and although we have to care for someone else I think we have to make extra effort to look after ourselves. I'm finding that deep breathing is really helping me. I'm eating really healthily and I'm pampering myself a bit too (bubble bath, face mask, anything like that where we can have a little bit of time to breathe and relax). Even a five or ten minute power nap I find helps me, but yes, it's a really bad situation and heartbreaking. 

    Lots of love and hugs everyone. Xxxxxxx