Horror stories

Mum has lung cancer in both lungs and 3 brain tumours (as far as we know from the last scan a month ago). Terminal now and they say she has a few weeks left.

As we all do we search and search for info and other people's experiences. I'm so sad for everybody's loss but there has been some really horrific deaths from lung cancer (which is what the drs think will kill mum). 

Mum's currently at home and wants to die here. She doesn't want to go in the hospice at all and I don't really want her to either. But after the stories I've read I dont know if I'll be able to cope with it happening at home. It's just me and mum at home with family coming every so often sound so selfish. I feel awful. I haven't spoken to mum about it because I don't want to upset her.

Mum did say when it's the last days if she is completely out of it and I can't cope then she will go in the hospice. I told er MacMillan nurse about this and she said there would be no point at that time because shell literally be days if not hours away from passing. 

Please can people give me experiences of people who have passed from lung cancer that arent horrific :(

Parents
  • Hi there ... your going through a really hard time at mo ... and I think you must feel overwhelmed by so many emotions... I can only give you info from my partner who like you nursed his wife (15years ago) and like your mum she didn't want a hospice and he nursed her , while like you too ,family came and went but it was all left to him 24/7 ...

    he spent all day and night caring for her and although he wanted to do it , it left him exhausted and feeling lost and alone ... he went through all those feelings too and it took him years to come to terms with all the memories ... but I'm proud of how he kept going , although if he could have had respite care and had a break he would have coped much better ...

    now I have the same cancer and I've told him I want to go into hospice if needed and told all my family the same as I know how much it takes out of people you love ... I'm sure your mum would want you to do whatever it takes to help you through this time ...

    please don't beat yourself up ... you are being amazing and I would be so proud to have a daughter like you ... so take care of your heart ️ big hug  Chrisie x

  • Sorry to hear your news. I wish you all the best with your health. 

    Thank you for your kind and lovely words xx

  • My mum passed away on the 31st of July from lung cancer. Like you and your mum she wanted to stay at home. On the Saturday she became very poorly and in lots of pain, we called out the doctor who suggested she go into the hospice to get her pain under control. She never came out and passed away on the Monday. 

    Looking back I am glad she went to the hospice as they gave her care we couldn't eg stronger drugs. Also toileting became an issue as she couldn't get out of bed. 

    My advice would be just go with what you think is best for you and your mum. You don't know what you will decide until you are faced with the decision. Whatever you decide don't give yourself a hard time. I have so many regrets now and wish I had done things and said things differently. 

    I wish you all the best and if you have any questions I am happy to help. Its such a traumatic time for you all. 

    I miss my mum every second of the day and wish I could turn back time. 

    Look after yourself xx

     

  • Hi, my dad is 87 and 6 weeks ago we found out he has lung cancer that has spread to his liver and bones. He is now bed bound with a catheter and a medicine driver for his pain. We have 2 nurses coming in twice a day and have been given a career 3 nights a week. The district nurses have been amazing and Dall everyday and we also have a number to call day or not for then to come out and give him top up injections.  It is so tough as he is now pretty much unresponsive. I really hope you get the support network that is out there. 

  • Hello.

    Sorry to hear you've lost your mum.

    My mum is totally refusing hospice. Even if she ends up in agony she still doesn't want to go in. She already has been catheterised. She's managing to use the commode still. 

    I work as a carer from my actual job. So I am preparing best I can for when the worst happens. 

    I will probably give you a message later.

    Thank you for your kind words.

    Stay strong lovely xx

Reply
  • Hello.

    Sorry to hear you've lost your mum.

    My mum is totally refusing hospice. Even if she ends up in agony she still doesn't want to go in. She already has been catheterised. She's managing to use the commode still. 

    I work as a carer from my actual job. So I am preparing best I can for when the worst happens. 

    I will probably give you a message later.

    Thank you for your kind words.

    Stay strong lovely xx

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