How to even cope?

Hi I joined this because my mum is now having end of life care for lung cancer. Her diagnosis was very recent and there's no treatment offered. It had spread too far and she's too frail.

She's now in a nursing home, sleeping a lot, very thin and weak, hallucinating sometimes for hours, hardly eats. She's not in pain and can't really remember what's happening a lot of the time. Occasionally she's able to chat normally but not often. We aren't nearby so can't visit often, that makes it much worse. She's deteriorating but it's hard to tell how fast. It seems fast but I've lost track. We only found out before Christmas. There have been family rows and I've lost money from not working. The pressure is awful.

 

It's like torture, day in day out, worrying and when I visit, watching her steadily slip away.  How do you even cope or deal with this? She has almost no quality of life. The staff do their best but she's dying, we all know it. It just seems so cruel.

if you can offer any strength I would welcome it. I keep feeling bad that I'm upset and it's not me who has to die.

 

thank you 

  • Hi

    I'm so sorry you are going through so much  pain knowing that you are loosing your mum. There are no right and wrong ways to cope and familes do get stressed with trying to cope in their individual ways. You have to keep your life going as it will still be there when your mum has sadly gone. Sudden illness and then a cruel prolonged death is very very difficult and I really smphatise with you dearly. I lost my mum from cancer when I was 25 years old and I miss her every day. You will get through this and I'm sending you all my thoughts at this very sad and trying time.

    Bless you 

    Carol 

     

  • Hi CatsEyes. I am going through something similar with my mum, I will send you a friend request if you want to chat. 

    Sending my best wishes 

    Audrey

  • Hi there, I know what you are going through, I am sitting in my mums nursing care room, she barely looked up when I arrived and hasn't spoken.  She has been this way for 10 days.  I l

    know she doesn't have long now.  I have watched her fade away over 9 months.  She was so lively and a young 80 year old when cancer of the oesophagus was diagnosed.  9 months have gone by so fast.  Watching her in pain, so thin, so unresponsive is horrible.  It seems so unreal.  I am juggling work and visiting, I live an hour away and work full-time.  I am requesting flexible hours so I can visit in the afternoons.  I took two and a half weeks unpaid leave in January but need my salary.  It is difficult.  Take care of yourself xxx

  • Hi thank you all for replying and for the shared experiences.

    Lindfield I was in a similar situation today and it was just so hard. Visiting feels important but work is also important and I wonder now as mum is so ill if she even knows I'm there. I wish I knew what to do for the best but I guess there's no instruction manual! But what you're saying sounds exactly like my feelings and worries too. Message me if you ever want to chat.

    xx