Hi I joined this because my mum is now having end of life care for lung cancer. Her diagnosis was very recent and there's no treatment offered. It had spread too far and she's too frail.
She's now in a nursing home, sleeping a lot, very thin and weak, hallucinating sometimes for hours, hardly eats. She's not in pain and can't really remember what's happening a lot of the time. Occasionally she's able to chat normally but not often. We aren't nearby so can't visit often, that makes it much worse. She's deteriorating but it's hard to tell how fast. It seems fast but I've lost track. We only found out before Christmas. There have been family rows and I've lost money from not working. The pressure is awful.
It's like torture, day in day out, worrying and when I visit, watching her steadily slip away. How do you even cope or deal with this? She has almost no quality of life. The staff do their best but she's dying, we all know it. It just seems so cruel.
if you can offer any strength I would welcome it. I keep feeling bad that I'm upset and it's not me who has to die.
thank you