Stage 4 large b cell lymphoma metastasis to liver?

My name is Dave I'm 46 and I had stage 4 large b cell lymphoma and after 6 rounds of chemo which didn't work I had my spleen removed,  I was always tired after the operation but was told my fatigue would go away which it hasn't. All the blood results were looking good and I had been clear for almost a year.  Then I started to get a sore right shoulder and a pain under the ribs and my stomach sticks out at the top so I went to the doctor's where I discovered I had lost 2 kgs in 6 weeks I currently weigh 56 kg.  She sent me for a scan on my back that came back negative but the pain never went away and now Im just a little bit yellow so I went back.  The look on my doctors face said more than she did. She wouldnt look me in the eye. Now I'm just waiting to see the Oncologist to confirm what I suspect and that is my cancer is back and its my liver.  I dont know what to do. I'm either shouting at my son or in my room crying why me.  The last 3 years have been so hard on me going through the chemo treatment by myself (I wouldnt let my son come) and now the thought of having to do it all again is daunting. I'm scared at the moment so alone and in a world of pain. Scared I wont beat this it feels worse than before and I dont have any reserves left I can feel every bone in my body.  I just need words of support from people who have been there and beaten it cause at the moment I feel its fatal and no one will tell me otherwise

  • Hello Dave, welcome to the forum.  I am so sorry for what you are going through at the moment, we all know exactly how you feel.  Some have been through a lot more than others, which is why I was pleased to see that you have found Max56's thread.  Max is a marvel, I call her Wonderwoman.  I am sure there will be others who will come forward soon to offer you comfort and hope, please don't give up!  

    I am currently having a second round of chemo after a second op for recurrent ovarian cancer - first op and chemo was 2012.  I also had breast cancer about 19 years ago, had op plus chemo and radiotherapy, so I can appreciate how you feel about starting it all again, it's a daunting thought. 

    I wish you all the luck in the world for your meeting with your oncologist, Dave, and hope that your pain, mental and physical, will soon be relieved. 

    God bless.

    Hazel x

     

     

  • Hi Hazel

    Thank you.

    I am going through a hard time.  Putting my feelings on paper and then reading other peoples stories gave me hope and a kick in the ***. no matter how bad you think you have it somebody has had it worse. So it kind of put it into perspective for me. 

    I had spent the day fighting Centrelink (sorry I'm an Aussie) for some help only to be told to go somewhere else. I thought I was losing it.  But I found this forum and well it gave me hope, Faith? to go on to fight the disease and fight Centrelink.

    Thankfully somebody at Centrelink had a heart and a brain and pressed the button which processes the 6 weeks of backpay that I was waiting for.  What a relief that was.

    So I have been on a roller coaster the last couple of weeks. The ride has been frightening but I realise that I am not alone there are people that still care which has helped. alot

    Thanks Hazel and thanks to everybody who has written about their cancer your story has helped.

    mental physical pain have you been watching my youtube channel :)

     

    Thanks Today I have cried tears of joy the first time in so many years

     

    Thank You

    Dave 

     

  • Hi Dave so sorry to hear about what has been happening. I was diagnosed with secondary liver cancer which started in my bowel luckily after a few chemo sessions my cancer went from my bowel and it was just the liver we had to concentrate on. What was weird was i had more cancer in my liver than my starting point the bowel. I lost my husband 4 years ago to cancer and it was so hard for me but i got through it. I know it must be very hard right now and in my opinion pain means strenght and if you can over come that you can do anything you put your mind to. By the sounds of what you say you don't think you will ever over come this well thats not true i thought it was the end of the road for me for a long time and the pain i went through in october of last year was worse than you could imagine. But i got through it and no matter how far cancer has went you have a chance why do you think theres a Can in Cancer. Being scared is more than normal and i bet Hazel can agree with me when i say we have all been worried and scared at some point or another. Theres a quote and it goes like this "Everybody wants happiness nobody wants pain but you can't have a rainbow without a little rain"  and it's very much true. I got the all clear from cancer just in januray there and the scream i made when i came out of that hospital in the carpark i was so happy did not think that day would ever come i really truly honestly did not. Don't get the attitude of "I give up" because once you do that you lose hope and there's always hope i promise that if you even need to talk just let let me know I'm here for support and to talk to. Hugs and lots of support your way-Diane x

  • G'day, Dave!  (Sorry, couldn't resist!)

    So glad you got your back pay, must be a great relief and one worry off your shoulders.  

    I am so pleased that my good forum buddy Diane has replied here, I hope her story will bring you some comfort and above all, hope.

    Keep us posted, good luck and take care!

    Hazel x

     

     

  • G'day Ladies

    Thank you.  Knowing that I'm not alone and that there is hope is one of the things i have discovered since coming to these forums.  I wont give up my faith wont allow it. Its just hard to do it by myself and at the same time try and hide it from my son.  But I'm getting there.

    Last week it was all pain and sorrow and I sought help from the Government and was told go away so I reached out to everybody and I was truly humbled by how people have responded.  (My Prime Minister's office contacted Centrelink on my behalf and asked them WTF was going on) The out pouring of support has been truly uplifting.

    This week is sunshine and heat (currently 39 degree's) I have accepted I have cancer and no more why me, just a strange calmness 

    I was losing my faith which was more scary than cancer

    But is has been renewed by God and by good people.

    So from Down Under

    Thank You

    Dave

  • Morning from the UK, Dave!  (Stop boasting about the weather, please, it's blooming freezing here, although bright and sunny!)

    I'm so pleased that you are feeling calmer now, and have had some good support - even   from your PM's office, wow!  What did I tell you about Max, eh, and Diane?  Both a great  inspiration to take each day as it comes in a similar situation to yours.  

    I read your response on Max's thread and thank you for thanking me, we are always here to listen - whinge all you want, mate, I think we are entitled to do that sometimes! 

    Thinking of you, good luck!

    Hazel x

     

     

     

     

     

     

     

     

  • Hi Hazel

    Thanks for your words of support it has given me strength.  Strong enough to post about my journey which helps.  I didn't realise that you also have cancer and have suffered also. Sorry. 

    Strange how you find help in the most unusual places from people whom you are never going to meet.  Yet somehow feel you know them. (when I picture you I see a bird a willie wag tail I think they are called singing away merrily). Yes I'm a strange little man and you wont be the first to say that. lol

    It's 7am here and a cool change has come in it's currently15 degree's and will only get up to 33. haha.

    I really should go to bed as I've been up since yesterday.  But I'm not tired. 

    Thanks for your support it really is appreciated

    Dave

     

  • Hello, Dave, hope you won't feel too cold in that 15/33 degrees!

    I'm really chuffed (hope that's not a rude word in Oz, it means 'pleased' here!) that you imagine me as a 'willie wagtail', we have wagtails round here and seeing them bobbing up and down and rushing about always makes me smile. Probably not the same type as yours but must be similar.  I think I might change my avatar if I can find a picture of one! 

    Please try to get some sleep, and do take care.

    Hazel x

     

     

     

     

     

  • Hi, Dave, have just read your other thread, what a dreadful time you've had, I'm so sorry!  When do you see your oncologist again, you can't be left to go on like this for much longer, surely?  I feel so angry on your behalf.  If you are able, please keep posting, we are all here for you.  

    God bless. 

    Hazel x

    PS I hope my new wagtail avatar cheers you up just a little bit.

     

  • Thanks Hazel

    Cheer me up? It made my day. There is nothing you could possibly say to me that would offend me.:). I was worried I offended you. People dont like it when you tell them you picture them as ?  

    I get to see the oncologist next Wednesday.  Not looking forward to it but the waiting is worse.  

    On a side note I received a phone call from Centrelink on Friday apperantly the person didn't appreciate the compliant I made about him.  So he cut off my son's payment and phoned me up to say. 

    Who do you think you are? Complaining to the minister. You are not special there are other families that have to wait what makes you think you can just jump to the front of the queue. Then he told me I have to have proof of my cancer to get a disabilty support payment which I have.nt even lodge yet, just saying I have cancer is not good enough. My doctor, oncologist and the hospital must all be lieing to me and all the paperwork I have submitted over the past couple of years must be fake.

    Lucky for him at the time I was gob smacked I had only just gone to sleep and I honestly thought I was dreaming surely nobody is that stupid.

    Well if he was upset before he is going to be really mad this time.  I wrote so many complaints about the phone call and the way I was spoken to, to so many different Minister's and organisation's this bloke's head will be spinning by now.

    Whinging to you when you have your own problem's is a little embaressing and selfish.

    So young lady how are you today?  How is your treatment going? Good I hope.  Cold over there is it?:)  Well today it's going to be 25 bright and sunny brrrr might need a jumper.  Where I used to live it would get over 40.c in the middle of summer, once we had a week of over 50.c. Just heard 40.c next Monday so our cold spell is almost over.

    Thanks Hazel you are an inspiration to me.

    I put up a pic that best describes me.. I should of called it,  me in Centrelink 

    I will be including you in my prayer's tonight.

    Thank you for your support