Stage 4 large b cell lymphoma metastasis to liver?

My name is Dave I'm 46 and I had stage 4 large b cell lymphoma and after 6 rounds of chemo which didn't work I had my spleen removed,  I was always tired after the operation but was told my fatigue would go away which it hasn't. All the blood results were looking good and I had been clear for almost a year.  Then I started to get a sore right shoulder and a pain under the ribs and my stomach sticks out at the top so I went to the doctor's where I discovered I had lost 2 kgs in 6 weeks I currently weigh 56 kg.  She sent me for a scan on my back that came back negative but the pain never went away and now Im just a little bit yellow so I went back.  The look on my doctors face said more than she did. She wouldnt look me in the eye. Now I'm just waiting to see the Oncologist to confirm what I suspect and that is my cancer is back and its my liver.  I dont know what to do. I'm either shouting at my son or in my room crying why me.  The last 3 years have been so hard on me going through the chemo treatment by myself (I wouldnt let my son come) and now the thought of having to do it all again is daunting. I'm scared at the moment so alone and in a world of pain. Scared I wont beat this it feels worse than before and I dont have any reserves left I can feel every bone in my body.  I just need words of support from people who have been there and beaten it cause at the moment I feel its fatal and no one will tell me otherwise

Parents
  • Hi Dave so sorry to hear about what has been happening. I was diagnosed with secondary liver cancer which started in my bowel luckily after a few chemo sessions my cancer went from my bowel and it was just the liver we had to concentrate on. What was weird was i had more cancer in my liver than my starting point the bowel. I lost my husband 4 years ago to cancer and it was so hard for me but i got through it. I know it must be very hard right now and in my opinion pain means strenght and if you can over come that you can do anything you put your mind to. By the sounds of what you say you don't think you will ever over come this well thats not true i thought it was the end of the road for me for a long time and the pain i went through in october of last year was worse than you could imagine. But i got through it and no matter how far cancer has went you have a chance why do you think theres a Can in Cancer. Being scared is more than normal and i bet Hazel can agree with me when i say we have all been worried and scared at some point or another. Theres a quote and it goes like this "Everybody wants happiness nobody wants pain but you can't have a rainbow without a little rain"  and it's very much true. I got the all clear from cancer just in januray there and the scream i made when i came out of that hospital in the carpark i was so happy did not think that day would ever come i really truly honestly did not. Don't get the attitude of "I give up" because once you do that you lose hope and there's always hope i promise that if you even need to talk just let let me know I'm here for support and to talk to. Hugs and lots of support your way-Diane x

Reply
  • Hi Dave so sorry to hear about what has been happening. I was diagnosed with secondary liver cancer which started in my bowel luckily after a few chemo sessions my cancer went from my bowel and it was just the liver we had to concentrate on. What was weird was i had more cancer in my liver than my starting point the bowel. I lost my husband 4 years ago to cancer and it was so hard for me but i got through it. I know it must be very hard right now and in my opinion pain means strenght and if you can over come that you can do anything you put your mind to. By the sounds of what you say you don't think you will ever over come this well thats not true i thought it was the end of the road for me for a long time and the pain i went through in october of last year was worse than you could imagine. But i got through it and no matter how far cancer has went you have a chance why do you think theres a Can in Cancer. Being scared is more than normal and i bet Hazel can agree with me when i say we have all been worried and scared at some point or another. Theres a quote and it goes like this "Everybody wants happiness nobody wants pain but you can't have a rainbow without a little rain"  and it's very much true. I got the all clear from cancer just in januray there and the scream i made when i came out of that hospital in the carpark i was so happy did not think that day would ever come i really truly honestly did not. Don't get the attitude of "I give up" because once you do that you lose hope and there's always hope i promise that if you even need to talk just let let me know I'm here for support and to talk to. Hugs and lots of support your way-Diane x

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