Hi Collie 2,

so sorry to hear of your diagnosis, my dad recently passed away from esophageal cancer, it had spread to the lymph nodes near the bowel by the time he was diagnosed, he was offered chemo and was told taking this may give him an extra 3 months if the cancer responded however this wasn’t guaranteed, he also gave my dad 1 year. My dad didn’t take the chemo as he wanted to have quality of life for his remaining time, sadly he didn’t get that either he passed away 3 months later. Everyone is different and there’s no easy answer, my dad made the right choice I don’t believe he would have seen the end of his chemo the cancer took over so quickly and the side effects were not worth #potentially if at all# giving him an extra month or 2. Your body may be stronger though do deep down what you feel is right for you x

My husband is in hospital with gullet cancer was told on Friday he was dying on driver getting 120mgs morpheme in pain constantly have now been told not dying but not good staying with him all night 

My husband has driver on 120 mgs morpheme still in a lot of pain it is awful to watch xx 

Hi Katie, 

i lost my dad 58 in March to this. He was initially diagnosed in August last year and was due to have the operation to cure in Feb. End of Jan we found out it had spread even after intense treatment. 

My dad was my world and so is my grandad so I know how you feel in terms of it being your grandad and his young age. 

The pain relief was good, dad had a syringe driver towards the end which kept on top of it. He lost a lot of weight as he wasn’t able to eat even after having a stent put in to try and open his oesophagus up a bit. 

I don’t want to talk about the end as I pray for a miracle for you, but will say that dad just became withdrawn, he was there, but wasn’t there if you know what I mean. The nurses said we would notice this and it would make us upset, but he himself wouldn’t realise. I was with him right until the end and it was the most peaceful I have seen him in months and months. 

Stay strong, you are very young to be dealing with something so horrible so speak to people and get support where you can x 

My husband is in hospital with this terrible cancer they can’t control the pain as the nerve endings on gullet and spread to lymph nodes absolutely awful watching this hasn’t eaten over two weeks constant pain on driver at 160 mgs morpheme and now for chronic pain methodone has anyone else on hear been in my situation staying at hospital for two weeks now 

hi

Hi there my husband passed away last Christmas Day of the same as your husband he was diagnosed on the 16th nov and was gone Christmas Day he had no symptoms only a small amount of indigestion and said now and again his food didn't go down very well nothing else doctors said he had a stone in his gall bladder then once in hospital he had a scan to locate the stone and they found no stone but oesophagas tumour which had already spread to his liver and lungs no chance of treatment and he became very ill very quick I feel doctors let him and us down terribly

Hi

I was diagnosed with stage 4 oesopegeal cancer in July it has spread to lymph nodes and my adrenal glands. I'm 40 and have a wife and 3 kids. The treatment is going well but I have yet to find out if it is stopping the growth as intended (they are not looking to cure at this late stage). My symtopms started in March with dysphagia (trouble swallowing food etc). I had a persistent headache. It got to the point where I could only have liquid (soups etc). Once the treatment started I could swallow food better although the majority of the time I eat it causes stomach upset. Pain control is fine with just cocodomol. I dont know how much time I have left and that is scary but i'm trying to keep positive and hopefully they can keep me around for a while yet.

Sorry for the rant its just carthartic to blurt it all out on here

Cheers

Hi Katie.

Such courage writing on this chat page for advice about your Grandad when your only 14.

Cancer is a tricky thing. Not all suffer the same issues .

complications, treatment and outcomes.

I haven't had any experience with oesophagus cancer but Mam died aged 66with lung cancer, dad died aged 67 with prostate &kidney cancer and I've got stage 2 breast cancer. So I have some knowledge. My nieces who are 12 and15 didn't like to see there grandparent suffer is the final days-it's hard for grown ups to watch deterioraion.

Try and spend time with your grandad.

Take photos. Tell stories. Laugh and hug.
Tell him you love him. 
Time with Family is so precious.

Its Ok to cry too- x

Thinking of you 

much love Efffie x