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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Probably when they make an outcome of cancer as retrovirus disease,

    well-known for bad neurological conditions, or step forward with immunotherapy.

    Simple killing by radiation or chemotherapy is not a universal solution.

  • Dear Tanya,

    Alright, maybe it wasn't a good idea to ask you to write, so let's try something else.

    Dictate to someone else, and they can write for you.

    How about that?

    Kathy

  • Dear Tanya,

    Come on, mate...

    Kathy

  • From the bottom of my heart, I am utterly sorry for not writing as often.  I suposse as time withers away, its bound to happen at some point that my writing too shall do the same.

    I really haven't much to say, redundancy mostly, yet here all the same...

    I'm not afraid, upset, un nerved with those who have walked a longer bridge so far away from me even the best binnoculars keep them from my eyes.  My other friends & family will do what they see fit for themselves, they are human & I can't fault them for that, for if I do, I only fault myself. I call that Peace.  Today is such a wonderful day but then, when you've seen & been through harsh truths & tests? Everyday is a good day. 

    I am finally starting to see the signs of beloved Spring, much like myself, it has been rather lethargic in getting here, I hold no great rush for the ghastly Summers, summers you don't need a grill for when you can use the hood of your car!  Speaking of food, my friend lives too far away to be able to make great meals for me; she is young & living that life, as she should.  I have lasagna planned for this evening (I also had it planned for last night...d$@! symptoms..... Today I feel much better than I have since Easter.  I always attend an Easter feast with my Mother & the parents we all have; not biological parents but adopted by our hearts.... Ahhhhh yes, TT ate entirley too much wonderful food, oh yes, the kind of food that makes your eyes roll back...... I am so happy God allowed me to enjoy such wonderful variable foods.....I will never say it enough my friends, my cup runneth over :-)

    I was in bed until that following Weds. from my glutony & that was the 1st I was hungry since I filled 4 heaping plates of yummyness on the holiday.

    I lay in bed last night letting my eyes wander & they stopped to look upon my ankles (I was wearing shorts as I was feeling very warm) I reached down to wrap my thumb & forefinger around my ankle......I could have decided to choose to be sad, my thumb & finger have never been able to touch eachother.  I have, as my Mother always called them, piano fingers, so I gave my genetics the blame *wink*.....

    As for Hospice, I have been doing everything short of begging for sleep meds!!  I think they are waiting for that natural process of dying where the person is asleep more than lucid, I decided they were not going to listen or care of my pleads for dreams & bought over the counter PM meds for myself, the only problem I am having with them is the next day.... groggyness.  Granted, I have cancer & am allowed to be sleepy but not like this.  So my next move is to visit MY Dr. that KNOWS the tolerance I have for these types of meds & finally start dreaming again, I can not write touching poetry on zero sleep!!......I will keep you posted, unless I'm sleeping that is ;-).....

    Still proving them wrong but feeling the reprocussions from it,

    TT

  • Feeling not comfortable to write ahead of all those who begged for

    long-waited post, but there was feeling the author is still among people on Earth.

    Seems there's no brutal pain now, and the pace of writing doesn't reveal the things change

    to worse.

    The Immune Stars were asked to act more gently, seems they do... but why they listen

    to some "stranger"?

  • Dear Tanya,

    So you've been resting your 'piano fingers' and eating?  No matter, you're back and that's all that counts.

    You say you can't write poetic words on zero sleep.  You do realise, though, that you are the poetry.  Whether you write (not what you write) is what people check your thread to hear.  That's not quite true.  I like your creative mind, because I can relate your poetry to who I think you are.

    I can identify with the eating thing too, though. I'm trying to be a bit more adventurous with food.  I had Fajitas for the first time today.  A bit silly really.  It was too spicy and made me nostalgic for real food.  I got taken back to a time when eating was all about Sunday roasts and pie and mash.  I'm a simple soul really, but I will persevere with funny food.

    I'm glad you're feeling better.  However, you wrote "Still proving them wrong but feeling the reprocussions from it."  Oh, I do feel guilty; like I'm forcing you to write.  Still, I can live with the guilt.  Hope to hear from you when you don't feel so tired.

    Best wishes

    Kathy

  • Hello Tanya

    Thank you for contacting us , its so good to hear from you you are always in my thoughts and prayers , You are such a brave lady

    Much Love Brenda x x x 

  • Dear Tanya,

    Thinking of you.

    Kathy

  • May God Bless you Dearly

  • Dear Tanya,

    I haven't heard from you for a while.

    How's about an update?

    Best wishes,

    Kathy