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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Sorry about being a bit vaque as well as being in such a rush to write I didn't finish the entire word!  Everytime I go to the hospital they draw a couple of vials of blood and run their tests, pancreatic, electrolytes, & many more, but for a person that is "Stage 5" such as myself, my lab work should not be normal by any means,,,,,

    Hope that helps midway :-) sorry about that...

    TT

  • ...I am glad all of these Dr.'s & nurses have been wayyyy off base with their "This is when your going to die" concepts, I wouldn't have all of you had they been correct, I would have been gone 16 months ago.  But how dare any of these people say this to anyone?  Is that not a bit like staring into a crystal ball?

    ...I have been feeling poetic words shooting in & out of this brain of mine, so be on the look out ;-)

    Much Love,

    TT

  • Hello Tanya, Am ready & waiting for those poetic words!!! much love from skyblue xxx

  • ...!...

    My message was of course not about anything vague or missing,

    this is your thread first of all.

    But, the message sounds strangely from a more healthy one.

  • Anyway the Immune Stars are most probably in action though may be

    a bit harsh at times.

  • In fact, there's also Stage 6 but in some other classification as I recently

    got to know, it has 4 stages since metastasising.

    And your cancer seems to exactly correspond to Stage 5 in it,

    according to the character of pains.

  • Dear Tanya,

    Sorry to hear about the crap you're going through, but am I glad to read about that 'special friend' of yours.

    Sounds like everything they are is what I wished for you, but in reality!

    As for having a week to live, we know that doctors are unsure of the course of an illness.

    Kathy

  • Hi Tanya

    You must be made of tough stuff.I didnt even know that stage 5 existed.I often think that when they master genetic engenering that they will write a lot of us flawed mortals out of the picture but it would be good if they managed to keep the good parts.You are a lesson on how to stay strong.

    I am glad that your friend came good in the end.I hope she is making you beautiful meals.

  • Dear Tanya,

    I've been on the lookout for any "poetic words" from you.  Still nothing so far.

    Maybe 'poetic' isn't on the cards for you at the moment, so how's the pain management doing?

    Kathy

  • Dear Tanya,

    You're being very quiet.

    I've got a feeling you can see that I'm getting concerned, and are finding it amusing.  Don't though.  Just put my mind at rest and write...

    Kathy