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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Dear Tanya,

    I'm getting behind Tony in the queue for people with a complex.

    Thing is you need to be at the front in order to answer our questions.

    Kathy

  • Hello Tanya

    I am still thinking of you too , If you are not well enough to contact us could you ask a friend too  , we would love to hear how you are getting on , You have many friends on here dear please make contact with us You are in my thoughts and prayers God Bless You

    Love Brenda Shropshire UK x x

  • Dear Tanya

    I hope all is well for you.I am reading a book of irish poetry.I throught of you when i bought it.I know you wanted to go there but there is a long Irish tradition of the Ireland of our dreams being better than any reality.Anyway i hope it is not raining in your Ireland and you are enjoying a guiness and a big plate of potato cakes.

  • Its so interesting that each of us has a "twin" out there in the world somewhere.  The Chaplan that had paid a visit to me while I was hospitalized almost made me fall off my bed....Although I never mentioned it to him, he bore the resemblance of my Father had he made it to this gentlemen's age.  I heard most of the things he was saying (as the morphine would allow) but the thought of my Dad still walking on this Earth overtook my attention....If only... My new Hospice nurse came for her 1st visit last Friday.....Another visit from beyond;  she didn't favor my Grandmother as far as looks but her demeanor, her voice, the way she carried herself, its as though my Father's Mother (who died 2 years before my Dad) had too, came back into my life.  Who better to take care of me in these end times then my very wise "Grandmother"..... If only....

    I was on alot of morphine while I was in the hospital, yes, for the pain, pancreatits hurts.  I will be on it until the day God calls me home.  I so hoped I was going to be able to write about the wonderful foods I have been sinking my teeth into but not yet, pancreatitis takes a very long time to heal with a highly compromised immune system.  It sure does give me hope, something to look forward to each day.  Trying foods has made me nervous, as good as they taste it scares me I will have taken 2 steps forward & 3 steps back.  I had a very brave moment the other night, I believe the braveness derived from my need for real foods.  I had a sub, ham & turkey on Monterey Cheddar bread with a little lettuce, green peppers, a little onion, cheese, mayo & a dab of sweet onion sauce (oh yes, these ingredients worried me but I had to try)  I, thankfully, did not have the pancreas upset but the heartburn kept me up.  I smiled through the heartburn saying softly to myself, "I'll take it....."

    I saw my family Dr. the other day as a follow up for my stay in the hospital.  I was so impressed!  She was thouroughly on my side.  "If eating is your quality of life then we will make that happen."  Awesome to throw a worry that kept me up night after night, in the trash.  I won't starve to death.  My new nurse squashed my 2ndary worry;  dying in pain.  So today, I have, not even one worry to carry upon my shoulders this day......Who can say that.

    I am saddened yet thankful to know there are other terminally ill people out there with me..... May God keep you Peaceful in every one of your circumstances & may you believe in miracles......

    My apologies for giving anyone that complex :~) 

    The sun shines into my room this morning, making the entire house crack here & there as nature warms its skin.  Not much for sleeping noise but good to feel that Spring is not far long.  Sleeping is something I have been doing much of, yesterday I had fallen asleep in a position I would have never ordinarily slept in.  When I woke, it was as if I were paralyzed, not in a scary way but in a peaceful, comfortable way..... Is this how the end will be?  a peaceful paralysis just before my life slips away?  To me, Life is Hell, after this world is no longer a part of me, nor I a part of it, it can only be perfectly beautiful when I am released from Hell........

  • Hey Tanya,

    I was listening to this song when I read your entry and now every time I hear it I shall think of you dear friend.

    http://www.youtube.com/watch?v=02J7WGdcwxY&feature=related

    I am so sad to hear that you cannot enjoy the food, one of lifes pleasures...hopefully one day that pleasure will return.

    I have oftenthought of the twin thing as people often say other people look like so and so....I often walk round our town and see likeness but there are people who are almost the twin of others so I reckon there are more out there than we realise!

    I hope to hear from you soon..

    Much Love

    Tony xx

  • What if that body craves for more calories indicates

    the struggle is not over.

    Was interesting to know about the original tumours, how they are,

    aren't too upset with pancreatitis at leading role for now.

    The Immune Stars are probably continuing their way through,

    what if they divided the negative energy into 2 diseases to make each

    less deadly?...

  • Hello Tanya , good to hear that you are having 'Brave Moments', keep on having them....I notice it is the first anniversary of your signing on to this site.....sending you lots of love, skyblue xxx

  • Dear Tanya,

    You write of release from your hell.  I'm thinking you mean your world of pain.

    I hope you're not referring to emotions, because you seem to have that sewn up.

    Kathy

  • Terminal, I am so glad you are still here, blimey tis been a year or so since I came on the site.  You are an inspiration.  I have so far survived Hodgins Lymphoma, I wish you much luck and encouragement, keep writing the poems.  Chrissie  xxxxx

  • Hello Tanya

    It was good to hear from you thank you for your reply,

    I am sorry you are having to have medication for so much pain, Pleased to hear you have been having some enjoyable food you made my mouth water with that tasty sub, just a pity you had heartburn after it. but yes if eating nice food is your quality of life you enjoy it , pleased they are going to make it happen for you

    Pleased to hear you have a better medical team , that's really great news it makes all the difference if you and they get on  together, hope they can help lift this heavy burden form you ,and help you to enjoy life better

    Yes Tanya we are praying for a miricale for you my special cyber friend

    Spring is on the way too in the Uk , the snowdrops are coming out in the garden, and we have many spring bulbs pushing their way up , its good to see the spring flowers coming as we have had a bad winter this year. Do you have a window to look out onto a nice garden I hope so

    You talk about slipping away , I hope you don't slip away no where yet, we all on this site just love reading your letters , Have you or are you writing a book of your experiance's of your journey through life? or have you written a book of your poems if so I would really love to buy one , you are one brave lady Tanya you are a great inspiration to us all.

    I am sorry you are not well enough to make your dream trip to Ireland . I am not Irish but I love Ireland I have been so many times , Have you got a favourite Irish singer I have many I could send you DVDs of any Irish singer you like , most have lovely views of around Ireland on them, and DVDs of of great Celtic traditional music if you cant get to Ireland I could bring Ireland to you with good DVDs , I have many freind's in Ireland that would help me make this happen for you , We would love you to clap your hands and tap your toes to our favourite music , Have you got Irish Ancestors Tanya ?

    I have noted your address on a previous mail of yours on here is it still the same ? Take care dear Hope you have some sunshine in your day today , You are in our thoughts and prayers God Bless

    Much Love Brenda Shropshire England UK     Hugs and x x x x