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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • When Grumpy comes round with that feast I think I may just turn up!

    So,so glad that you have finally got the care and sensitive team that you Tanya truly deserve. I absolutely love that you will be eating all those dishes you described to me...especially my personal favourite brocolli and cheese.

    Tanya, if your email is working shoot me a mail to let me know how you are doing as quite often things are said in email that cannot be siad on a public forum so really want to catch-up.

    You don't have to do anything that you don't want to do so please keep relaxed and get back some control.

    Much Love dear friend

    Tony xxxx

  • Hello Tanya,

    So good to hear from you & that at last you are receiving the proper care & love that you so deserve. I like the thought of you at last feeling comfortable, watching the snow fall,....why does snow  often have that  peaceful, quiet & calming quality?

    I send you loving thoughts & big hugs. Skyblue

  • Nobody is perfect, especially if one is not a physician.

    Interesting what Dr. said about tumours in lymphatic system

    which made cancer terminal.

    And, what was morphine for - severe pains again?

  • Dear Tanya,

    It's  the strangest thing.  You write that you feel safe now so it then follows that your readers and contributors will feel similarly (their replies reflect this).

    What is it whenever we see falling snow, it evokes some sort of emotion in us; of nature and the truest perspective of life - that life events happen and will always occur.

    I'm glad you see the value of things you've experienced.  The only value I can see is your controlled versus uncontrolled pain (controlled. of course).  Or the fact that bad times make you appreciate the good ones.

    What your story tells readers is that the 180 day eligibility rule for hospice care can be overcome!

    I want to write something interesting and possibly uplifting, but tonight I bow to your ability to rise above rules, regulations  and other people's expectations.

    Kathy                 

  • Hello Tanya ,

    Just thinking about you & wondering how things are & if you are back to eating regular foods yet...I do hope so.

    Sending you hugs & much  love, Skyblue xxxx

  • Dear Tanya,

    I'm wondering how you are, and like skyblue, if you're on solid food and whether it suits you if you are.

    I'm wondering if your optomism remains, or has settled and faded, because change is stressful when you can physically handle it and you're  not.

    Take care.

    Kathy

  • Dear Tanya,

    How are things going with you?  I'm hoping everything's as good as it was when you last wrote.

    Kathy

  • Dear friend,

    How are you doing and have you got that email sorted as getting a complex that you are ignoring me

    Catch yer later!

    T xxxxx

  • hi my heart aches for you i cried when i read your story as you see my husband whos 54 is also terminaly ill due to lung cancer i spend day night with him im sure you will find most of us are afraid to die. i wouid come visit taik to you if you were localy never feel alone we are here for you day night my thoughts and prayers im sending them to you also my love 

  • Hello Tanya,

    Still thinking of you, just like all your friends on this site & do hope that you are comfortable  & able to enjoy some lovely food at last.

    With much love & big hugs from skyblue  xxxx