EMOTIONAL SUPPORT FOR RELATIVE - DAD BEING VERY FATALISTIC AFTER BEING DIAGNOSED WITH ADVANCED PROSTATE CANCER

Hello. I wonder if anyone can advise me on how to help improve the mindset of my father who was recently diagnosed with advanced prostate cancer. Unfortunately he has become quite fatalistic,

He was diagnosed earlier this year after his health deteriorated very badly over a short period. Essentially, he'd dealt with the immediate symptoms of his cancer by reducing his fluid intake to the point that he became badly dehydrated and, in turn, malnourished. It was at this point, when his immediate health was very poor, that we finally got him to the doctor. It turns out he had been ignoring symptoms for two years.

The bad news is that his cancer has spread to the bone and is incurable.

The good news is that eating and drinking properly -  together with hormonal therapy - have improved his immediate health greatly. He is close to his old weight again, is alert mentally and can walk a reasonable distance without getting exhausted or out of breath.

However he is incredibly fatalistic.

For a start, he continues to confuse the fact he was told his condition was incurable with being told it was terminal. The doctor who gave him his diagnosis - and I was with him - made it clear that many people live with controlled prostate cancer for many years and may well die of something else.

The hormonal therapy is certainly proving beneficial. However the patient imagines that the fact that an operation or chemo has not been discussed so far as meaning that he is a lost cause. I think this may be because he is from a generation where cancer could not be treated in the way it is now.

The initial invitation to hormonal therapy was a battle. He didn't realise what he was being offered at first and imagined it to be purely palliative. However he now seems very happy to get his monthly injection.

Still every fresh piece of news or invitation for a scan or biopsy is proving a battle. He tries to find excuses not to go like a child trying to avoid the dentist. Once we get him to go, he is happy that he went. But going through this process every time is difficult. 

Similarly he told me today he'd had bad news - his first biopsy had shown that the cancer was advanced. That wasn't bad news. It was merely confirming what he was told 4 months ago.

The hormonal therapy has helped him enormously and I'm sure this and, perhaps, other treatments can help improve his immediate health and prevent the cancer from progressing. However I really wish I could turn his mindset round - end the fatalism, help him see how his health can improve and that he can live with prostate cancer for a long time. Can anybody suggest anything?

Just to be clear, all the information he has been given has been clear. Rather he's hearing what he wants to hear or finding the negative in everything. I tactfully suggested exploring cognitive behavioural therapy but he was having none of it. 

Thank you. 

  • Hi Scotsboy72 I am so sorry to hear about your Dad.  Do you think that maybe he has some memory issues or something else as well as the cancer, he sounds like he is getting confused.  It is a lot to take in for him and you and the family.  He is lucky to have a someone who cares so much.  Maybe it is his way of coping with things and in time will realise it is okay and he is not dying of cancer but rather living with cancer.  Good luck.

    Lee x

  • Welcome to our forum, scotsboy72.

    I’m sorry to hear about your father’s diagnosis and how difficult things have been for you both. 

    It’s understandable that you want to help him shift from this fatalistic mindset, and the fact that you’re looking for ways to support him shows how much you care.

    Sometimes, when someone hears the word "incurable," it can feel overwhelming and final, even though, as you mentioned, many people live with advanced prostate cancer for years with the right treatment. It sounds like the hormonal therapy is already helping him, which is such a positive sign, but I can see how challenging it must be to keep encouraging him to stay hopeful and engaged with his treatment.

    You might find it helpful to have a look at these pages from our website Family, friends, carers and cancer as it offers advice for those supporting a loved one with cancer, including how to take care of your own emotional wellbeing and How to support someone with cancer which covers practical tips on communication and understanding what your loved one may be feeling, which could help with your father’s mindset.

    I hope you find something on the links that feels useful, and please remember to look after yourself too. 

    Best wishes,
    Renata, Cancer Chat Moderator

    • Hi Scotsboy72

    A few observations from caring for a dad in the past 

    Regression to childlike behaviour happens to us all at one time or another it is a sign if fear and anxiety and needing reassurrance

    We all hear only a little of what we are told at the drs due to the same anxiety

    Something that one person understands may sound double dutch to another 

    Encourage your dad to ask questions older generation often adapt to the dr is god hierarchy and need encouragement to advocate for themselves 

    Try the Prostate Cancer support charity 

    Also 

    Death is something we all go through and your dad may be depressed and scared

    I think a chat with the nurses here or macmillian would be a kinder gentle approach than trying to fix his mindset with cbt. 

    Ask yourself why you need your dad to be jolly all the time? Can he not be allowed to process in his own way and time frame?

    I understand you are frustrated and want your dad to be happy and you are doing the best you can .what are you doing to look after yourself?  It important to step back and take a breather and refresh yoyr batteries too as a carer ....sometimes when we do our dads suprise us!

    Good luck and keep doing the nice things together you will be glad you did