Hospice or home?

Hi all..

My mum got diagnosed with lung cancer in october 2021. She had 2 tumours removed but in january she stopped walking due to pain in bone and they discovered the cancer had metastasized to her bone and  skull.

Since she has had 1 session of radiotherapy and had a metal rod inserted to strengthen the bone as it was fractured. 

She is still unable to walk and cannot even sit up. She has now been moved to a Marie Curie hospice and is on multiple pain relief including anaesthetic into her leg. She has developed bedsores stage 2 on her lower back and has to have dressing changed twice a day.

We are waiting for a scan to determine how effective the radiotherapy has been but the nurses are saying if shes not strong enough for chemo she wont have it.

She just lies there and drifts off every now and then

Shes in severe pain so has lots of meds...i think its best she came home as all that shes having is dressing changed and pain relief. Shes saying she feels medical care is better in the hospice...

Given that she may not have long left..what is best

Parents
  • Hello Hannah271990

    I'm sorry to hear that your Mum's condition has deteriorated over the past few months. It sounds as if it's a really difficult situation for you both. 

    It's good to hear that your Mum is receiving care at the hospice. I hope that they are able to keep her comfortable and that her pain is well managed. 

    It's understandable that you want to make sure that your Mum has the best care through this period of her life. Have you discussed any concerns that you may have with the hospice staff? It may be that they're better able to manage her pain relief in the hospice than they could at home. Or it may be that they're able to offer some hospice care in the home environment but either way, do speak to them about your concerns and questions. 

    If you'd prefer to chat with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9 am to 5 pm. I'm sure they will be happy to listen and offer any advice and support that they can. 

    Whatever choice your Mum makes for this period of her life, I'm sure that you'll support her and I hope that in turn there are others around who can support you. Do keep in touch here on the forum if it helps to have somewhere to post or to chat with others. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Reply
  • Hello Hannah271990

    I'm sorry to hear that your Mum's condition has deteriorated over the past few months. It sounds as if it's a really difficult situation for you both. 

    It's good to hear that your Mum is receiving care at the hospice. I hope that they are able to keep her comfortable and that her pain is well managed. 

    It's understandable that you want to make sure that your Mum has the best care through this period of her life. Have you discussed any concerns that you may have with the hospice staff? It may be that they're better able to manage her pain relief in the hospice than they could at home. Or it may be that they're able to offer some hospice care in the home environment but either way, do speak to them about your concerns and questions. 

    If you'd prefer to chat with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9 am to 5 pm. I'm sure they will be happy to listen and offer any advice and support that they can. 

    Whatever choice your Mum makes for this period of her life, I'm sure that you'll support her and I hope that in turn there are others around who can support you. Do keep in touch here on the forum if it helps to have somewhere to post or to chat with others. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Children
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