Caring for the Carer - Carer's week 2020

This week is Carer's Week. Looking after someone with cancer can be a huge emotional and physical challenge so it’s important to take time for yourself and get support.

You might feel angry, sad or guilty. You could also feel frightened about how you will deal with the emotional as well as the pratical aspects of looking after someone. These are all normal reactions. Cancer is happening to someone you love but it has also changed your life.

Being a carer can be emotionally and physically exhausting. At times it may feel extremely difficult and you just wonder how you’re going to cope. This is a very natural response. 

Some people feel guilty if it feels like hard work at times. This doesn’t mean that you don’t love or care for the person with cancer, It just means that you are human. Like everyone else when things are tough, you'll have your good and bad days.

Remember you can’t do everything alone. Most carers will need some help along the way, so don’t be afraid to ask for help from any of them when you need it. Lean on your doctors, nurses, psychologist, palliative care services, social workers, friends and relatives where you can. Carers UK can give you information and emotional support and they have support groups for carers all over the country. 

  • Hi,

     

    I have terminal lung cancer, had it for 13 months now. Just after Christmas 2019 and New Year my wife started to stay in bed until 1pm and some days even 3pm. Initially I was angry. I can still look after myself except I need help having a shower, this is due to my severe COPD and age. Anyway back to my wife. I started to realise she was depressed and she would not admit it. I eventually got her to see her GP. She did not tell him she was depressed. She told him she had problems sleeping. He perscribed her mild sleeping tablets.

    Her sleeping in continued, though not every day. Say 4 to 5 times a week. Finally I got her to talk to me properly. She told me she could not live without me, she also told me she was scared of the future without me.

     

    I gave her honesty a great deal of thought. I have since changed my bad habits. I use to drink alcohol quite a lot. I stopped drinking totally. I also changed my diet big time. Originally it was healthy and balanced. Now I eat baked salmon most days. I eat a can of salmon with whole meal brad most day. I have muesli every morning and eat a variety of fruits during the day. We both have researched the best foods for me to eat. We have also discussed my diet with my GP and other specialists.

     

    My point is now that my wife sees me looking after myself doing more for myself and looking really so very healthy she has is not depressed. She sees from my general well being there is a good chance I may live longer, please God. Previously I was relying on her far too much and it wore her down. She now takes an active part in my research on the best foods to eat etc. Does yoga with me. I have to do mine in a chair. We both find it funny. Our lives now are so full even if I do have terminal cancer. I am glad she did not tell her GP she was depressed. She would have ended up on medicatine that from experience can make matters worse. Sharing and caring are best. 

  • Hi cormac 

    I'm official carer for my darling wife, she has Alzheimers and parkinsons plus other problems she needs 24/7 care she can't walk unless supported can't hold on to walkers so wheelchair around the house, or support from chair or bed to commode or whatever.

    We've always talked about everything and plenty of laughs along the way. 

    If your wondering why I'm on forum I'm on palliative care since February 2016, 

    Everything out in the open is always best, i always keep positive thoughts and actions really helps. 

    Billy 

  • Hi Billy,

     

    I appreciate you replying to me, it makes a big difference and helps.

     

    Good for you being your wifes official carer. In your situation it is understandable having pallitive care. The more you talk about your situation the better you feel. Of thay I am sure, I have a pallitive nurse and we talk not only about my cancer but every day things like what is happening in the world.. I enjoy discussing world politics especially.

     

    Your staement at the end of you post is spot on Billy. 

     

    "Everything out in the open is always best, i always keep positive thoughts and actions really helps."

     

    Take care and God bless you,

     

    Cormac 

     

  • Hi Cormac, 

     

    after seeing your post I am so positive. My dad has metastatic lung cancer but given only 2 short months I am praying everyday we get longer with him. Hope you are keeping your spirits up

  • Rebecca,

     

    I am so sorry to hear about your dad. Lung cancer is horrible,metastatic lung cancer is probably one of the worst types.

     

    Best try to keep you dad occupied. I find that busy is good. Takes me somewhere else.

     

    Keep praying too.

     

    God bless your dad and you.

     

    Cormac

  • Just had a thought "it doesn't happen very often".

    Have you seen, [@Dor06]‍ " Stay strong,. String Carol has been on here for a few years doing a daily blog,.Well almost daily. 

    Keep positive and keep fighting both of you but not with each other. 

    Billy 

     

     

  • Billy,

     

    No I have not seen @Dor06 "Stay strong. Could you please give me a link, thanks.

     

    Doing my upmost to keep positive. We are both continuing to fight in our own ways but definitely not with each other.

     

    God bless you,

     

    Cormac

  • If you go to top of your page thares a thick blue line if you open search and type in Dor06 you'll get a list then find and open stay strong that should be it, I'm terrible with technical things but think that's right. Good luck,

    Billy