Have you ever experienced chemo brain?

     In the nine years I have been a moderator at Cancer Chat, I have often seen multiple mentions on the forum of this curious 'chemo brain' phenomenon which many people with cancer who have had chemotherapy treatment seem to experience. It’s not clear how many people this affects and studies looking at this have reported a wide range of different figures. As mentioned on our website in our page about chemo brain, it can range from 17 out of 100 people (17%) to 50 in 100 people (50%). For those of you who are only too familiar with what is often known as the ‘chemo fog’, this can be difficult to manage on a daily basis and can be very disruptive on a personal level. I remember reading this story on the forum of a single mother who was having to juggle everything work, children and life whilst at the same time struggling greatly with ‘chemo brain’. It must have been really hard for her as I am sure it is tough for so many of you who are going through this at the moment.

     On a lighter note, I thought I would introduce you to [@zuzanka]‍ who put orange juice in her coffee instead of milk – and no it didn’t taste nice! Although these anecdotes will inevitably make you smile, unfortunately when you are experiencing this cognitive impairment repeatedly, the impact this ‘chemo brain’ can have on your everyday life and the disruption it may cause at work or at home can be huge. Multi-tasking for example can become very difficult and it can be so frustrating to those who experience it.

     Is this something you can relate to? We’d love to hear your own chemo brain stories and if you have any tips to share to help the fog lift even temporarily, I am sure our members would appreciate to hear your suggestions. We have some tips on our website to help you cope with chemo brain which you can read here.  Let us know if these have been tried and tested by you or if there are others that worked for you which you would like to share with our community.

 

We'd love to hear your stories and personal anecdotes on this subject! 

Lucie, Cancer Chat Moderator

Parents
  • Ah yes chemo brain - I started getting the fog early on in my treatment. At first I couldn't find the words for things - I spent a whole hour calling curtains 'the window coverings' because I couldn't remember the word!

    My family has always had a mad way of chatting, picking up on things we started discussing hours earlier. To an outsider the conversations are probably hellish to observe however that's us and we're used to it! Since chemo brain though I've had to ask family to speak slower and discuss one thing at a time, and allow me to acknowledge a change in topic before we go off on one! Otherwise I get ridiculously confused!

    Luckily I can deal with it in good humour most of the time but it is frustrating sometimes when I'm not as quick as I was pre-chemo.

    I've been getting strange food cravings too so my mum makes the joke I've got pregnancy cravings and baby brain xD

     

     

Reply
  • Ah yes chemo brain - I started getting the fog early on in my treatment. At first I couldn't find the words for things - I spent a whole hour calling curtains 'the window coverings' because I couldn't remember the word!

    My family has always had a mad way of chatting, picking up on things we started discussing hours earlier. To an outsider the conversations are probably hellish to observe however that's us and we're used to it! Since chemo brain though I've had to ask family to speak slower and discuss one thing at a time, and allow me to acknowledge a change in topic before we go off on one! Otherwise I get ridiculously confused!

    Luckily I can deal with it in good humour most of the time but it is frustrating sometimes when I'm not as quick as I was pre-chemo.

    I've been getting strange food cravings too so my mum makes the joke I've got pregnancy cravings and baby brain xD

     

     

Children
  • Yes, me too! Window coverings..lol! Sounds like one of my explanations....

    its really odd, not being able to come up with the word you want, instead going into all kinds of descriptions...like " give us a clue" ...spelling can be difficult too, thank goodness for spellcheck! Lol....

  • Thank you for sharing your stories! I actually find "window coverings" far more elegant than "curtains". I might start calling them 'window coverings' myself :) 

    Lucie

     

  • I’m a survivor from 2013, I’m now 56 and your post made me smile. The irony is, I’ll never forget chemo brain. Yes, there is a light at the end of the tunnel, which I didn’t think I’d ever see. I went to a BC forum years ago and laughed, as we all agreed, ‘Post It Notes become your new best friend.’ The worst thing I remember is the shallow empathy. If I shared my concerns, the response was, ‘Oh I’m forgetful too.’ But chemo brain was different. I would be so shaken up by it, I’d be close to tears. I also recall screaming in frustration at my husband, “You don’t get it! I really can’t remember things.” Before BC I didn’t have the best memory, especially for trivial things,but I was always on top of things and super organised. To compensate I just look for strategies. I use a notebook to jot down everything and it stays goes everywhere with me. I’m a teacher and the return to work was a huge challenge. We use Apple TV so our iPad can be shown/linked to a large TV. To connect to this, a 4 digit code would appear. I was unable to retain that code long enough to enter it. So I taught the kids to do it, reading 4 digit numbers aloud. As a result everyone who witnessed this thought I was brilliant teaching 7/8 year olds to read such large numbers. I’ve only confessed to a few people my true motivation. Hang in there, my pink sisters, use forums like this to find support. You are not alone. Cheers from Melbourne, Australia.