Brca1

Hello 

I've just joined this forum.

im 32 and last year I lost my mum to cancer. She has been fighting for 7 years. Half way though her treatments she decided to have the testing for the Brca1 gene.. it came back positive. Anyway.. I had the genetic testing last year when she passed away as when I lost my mum it petrified me that the same was going to happen to me. It came back positive for me too so I am a Brca1 carrier . So dealing with the grief of loosing my mum and then being told I am Brca1 positive was not a nice thing. I had severe anxiety, constantly feeling my boobs for lumps and I still do that now and I make them so sore but it's hard to stop. Last year I had the ca125 blood test, a breast mri and also a scan on my ovaries etc and it all came back ok. But I still worry and it's always on my mind 24/7 . I was just wondering if there is any one else in the same situation? Or something similar. I found out I carried the gene in March 2020 at the age of 31 I'm now a year on at age 32, getting older, been stuck in lockdown doing my mind not good with overthinking constantly.

Thankyou for reading xx 

Parents
  • Hi Nat

    I am 42 and found out I had Brac1 at 32. Xx I just posted my first post but feel free to message me any questions I've had all my surgeries now so may be able to answer any questions you have xxx

    Sam 

  • Hi Sam

    i have just been diagnosed with BRCA1 

    I had my ovaries removed 12 years ago due to extensive family history but unfortunately was always told we could not be gene tested unless there was a living member with cancer 

    that is now me - I have breast cancer 

    the surgeon performed a lumpectomy despite me wanting a mastectomy and initially refused gene testing saying I already had cancer 

    thankfully my oncologist listened.  Having now completed chemotherapy I shall be having a double mastectomy 

    can I kindly ask did you have reconstruction and if so did you use silicone or your own skin 

    many thanks 

    norma

Reply
  • Hi Sam

    i have just been diagnosed with BRCA1 

    I had my ovaries removed 12 years ago due to extensive family history but unfortunately was always told we could not be gene tested unless there was a living member with cancer 

    that is now me - I have breast cancer 

    the surgeon performed a lumpectomy despite me wanting a mastectomy and initially refused gene testing saying I already had cancer 

    thankfully my oncologist listened.  Having now completed chemotherapy I shall be having a double mastectomy 

    can I kindly ask did you have reconstruction and if so did you use silicone or your own skin 

    many thanks 

    norma

Children
  • Hey Norma, 

    I'm not sure if you're aware, but the discussion you posted on this morning, hasn't been active since October 2022, so there's a chance you may not hear back from Sambob.

    I really hope that won't be the case but if you don't receive a reply, you could try reaching out to others on more recent discussions you find about this topic or by starting your own discussion.

    I hope this helps and all goes well with your double mastectomy when the time comes.

    Kind regards,

    Steph, Cancer Chat Moderator