Brca1

Hello 

I've just joined this forum.

im 32 and last year I lost my mum to cancer. She has been fighting for 7 years. Half way though her treatments she decided to have the testing for the Brca1 gene.. it came back positive. Anyway.. I had the genetic testing last year when she passed away as when I lost my mum it petrified me that the same was going to happen to me. It came back positive for me too so I am a Brca1 carrier . So dealing with the grief of loosing my mum and then being told I am Brca1 positive was not a nice thing. I had severe anxiety, constantly feeling my boobs for lumps and I still do that now and I make them so sore but it's hard to stop. Last year I had the ca125 blood test, a breast mri and also a scan on my ovaries etc and it all came back ok. But I still worry and it's always on my mind 24/7 . I was just wondering if there is any one else in the same situation? Or something similar. I found out I carried the gene in March 2020 at the age of 31 I'm now a year on at age 32, getting older, been stuck in lockdown doing my mind not good with overthinking constantly.

Thankyou for reading xx 

Parents
  • Hello I'm so sorry about your loss. Brca1 positive hearing that must've been so horrible especially about your mum to help you! All I can say is there still amazing people on this chat group and they have helped me through my problems but I don't think I should share with you at this moment in time However if you do want to talk I'm always here take care

Reply
  • Hello I'm so sorry about your loss. Brca1 positive hearing that must've been so horrible especially about your mum to help you! All I can say is there still amazing people on this chat group and they have helped me through my problems but I don't think I should share with you at this moment in time However if you do want to talk I'm always here take care

Children
  • Yes it's been a hard time without her here and she passed away before I could tel her I did test positive. I always overthink thinks and like I said lockdown has not helped at all I just feel being stuck in the house for a full year has not done my wondering mind any good at all. 
    I always think the worst of situations. 
    thank you for your reply to my post. I would like to take to others that are Brca1 too 

    thanks 

    Natalie x