Health anxiety caused by loss of my dad to cancer

Hi there, I am early 30s and have been experiencing anxiety for many years, in the last 3 years or so this has manifested into pretty severe health anxiety.

If you know anything about this subject and can spare 5 minutes to read my post I am open to suggestions....

I have always been close to my dad. He has been the closest person to me all my life. Typical daddy's girl. I idolise him. When I was in my early 20s he lost his business and spiralled into depression and turned to drinking. This is when my anxiety began. I desperately fought to help him to help himself. I needed my dad. This went on for a couple of years and then it hit rock bottom when he attempted to take his life. I brought him to live with me and my fiance and did my best to care for him. Mental health care is not great where I live. I went to doctors, heads of mental health departments...when I say I went to great lengths to get my dad the right treatment I am not exaggerating. However within a year or so of moving in with us my dad had managed to get back on his feet, found a job,got his own house....he even found a girlfriend. I felt like I could breath and relax for the first time in years. I finally had my dad back. He was happy so I was happy. I always had a strong instinct to look after my dad and protect him even when I was a little girl.

 

6 months later he was diagnosed with terminal cancer. He was 52. When he wasn't in hospital I cared for him myself. He deteriorated fast. He was gone within 4 months. About a year later the effects of it all began to creep into my everyday life.....in the form of anxiety. This was further fuelled by my dad's family bullying me over my inheritance which persisted for the next few years. 

It has been 5 years since he left. I have had children of my own in this time, which are the lights of my life and have saved me in many many ways, But I am crippled with health anxiety. I know it is caused by the years of worry with my dad, and now i am petrified I will die and leave my own kids. Every single thing that goes wrong in my body i convince myself it is cancer. I am at the point I do not know if it is my anxiety causing my health or my health causing my anxiety. I have very real symptoms and very real problems going on.

 

2 years ago at (it was during the years of bullying from family) I collapsed in my local supermarket. Taken to hospital all seemed ok. For weeks after I couldn't function. Standing up made me feel like i would pass out and I couldn't look after my child properly because I was so weak. Went to a private Dr and he did brain CT & MRI brain scans. Results normal.

Then started to get nerve issues, like tingling in arms and legs. Feelings on my skin like water was dropping on it. Feeling like my nerves were having a fit in a small area of my leg at times. Dr did full bloods. All ok. 

Got a patch of skin on my leg with abnormal changes. It is scaly but not itchy. Been prescribed numerous steroid creams that didn't work. Recently seen dermatology that gave me another cream. If that doesnt work to get biopsy as he had no idea what it was. Also to get a mole off with irregularities.

Been having leg pains coming and going in left leg. Sharp pains up leg, pains in calf. Some days the pains are there some days not. Also nerve pain in left leg.

Recently found numerous lumps down below, inside. Went to gp. She had no idea what they were so waiting on gynaecologist referral. 

Had a lump cut out my left nostril recently.

 

Get weird aches in my underarms that come and go. But no lumps etc. Have also suffered left breast pain for years. Have seen private consultant 3 times and he says it is normal.

These are just some examples.

I don't understand what is going on with my body. And It is not all anxiety as I have physical lumps etc. And could be coincidence but it is concentrated down my left side weridly. I feel like I am going mad. No Dr knows what is wrong with me. Fibromyalgia /ME has been mentioned.

I am exhausted with worrying about my health and with finding new things wrong so often. I am on meds now, propanolol which help to an extent, I do not want to go onto any type of brain chemical altering drug. That scares me too. I don't even like taking paracetamol.

 

I just want to live my life enjoying every second of my lovely kids and not worrying I will die and leave them. Have tried to find someone local who deals with health anxiety and PTSD that could help me over one this but no such person exists. Can't even find a Dr to speak to online that deals specialises in both of these issues. Have been down route of Councilling and CBT numerous times. It just doesn't work for me.

Did i mention I can't even hear the word cancer on TV or the radio without a literal shudder going through my body.and having to turn it off. 

I need to find a way to overcome this anxiety before it takes over me completely.

 

 

  • Hi ime know dr or anything but have you tryed mindfulness course i went .for cbt its a load of rubbish they tell you what things are not why they are .i found out its your flyt or fight mecanism out of wack . I had iregular heart beat its its amazing what stress can do .you shouldnt have been having to look after your dad he should have been looking after you its amazing what damage alcoholics can do to there family you need to write down in a diary the triggers . You will not beleive this but when someone dies there partner can get what the call broken heart sindrome it changes the shape of your heart thats why so many husbands or wives die shortly after its stress . The body releases stress chemicals its treatable . I had all sorts and its always caused by worrying about someone else . Do you feel guilty because you couldnt save your dad from cancer i felt that can cause problems you litraly have to canstantly telling yourself theres nothin wrong its stress say it out loud to yourself its like brainwashing yourself we talk to ouselves all the time in our our mind why did i do that should do this what should i make for tea ive learned theres tiffrent facets in aur brains its all about convincing that bit that talks back they call it the inner critic its stopped being you friend and its punnishing you you just have to retrain it then it will stop your brain from releasing cortisol noradrenalin the flyt chemicals that cause the anxiaty . Just keep at it we all get rashes and pains but we tell ouselves o its just dry skin and our inner critic beleives us .in your case it dosnt it just keeps coming back at you . I think we have spoken beforee nicola i know how anxiaty can make your life missery best wishs

  • Hi Nicole37. Health anxiety is a beast of a condition. I totally relate to what you were talking about. In fact, I've had many of the same symptoms! I thought I had MS and had MRI and other tests. Didn't quite get the all clear because I moved my head during the test so I'd have to do it again but now am too scared. When you spend a lot of time around sick people it can often lead to health anxiety. My mum died of lung cancer and COPD, but had neurological problems through out her life (like MS but not diagnosed). Every time I hear details of a condition it will stay in my brain and nag at me, making me feel like I might have it. It's awful. I have done some research into it, and some interesting things I have read said that it's a form of OCD. In that, first we obsess and then we have the compulsion to "check" - check our bodies, check online researching symptoms. 

    But ultimately, it's anxiety for the most part. It is also a problematic way of thinking. This is why CBT can help, not in terms of getting therapy necessarily, more in terms of changing how we think. Our brains catastrophize everything. So a headache is brain cancer, tingling is MS, cramps is cancer, like - every symptom means it's the worst case scenario. There are a lot of really helpful Youtube channels that talk about ways to cope with this. They do help, at least for a short while, but we do have to keep at it. 

  • If I had read your post 3 years ago I would have had no idea what you were talking about.  However I lost my mum to cancer two years ago. Since then I have gone from being someone who never goes to the doctor to someone who has been to the GPs14 times, A and E 3 times and seen consultants in the following fields ENT, Colon, lung, heart and neurology.  At one point was a rational human being. But no longer it seems.  I can even date when it started 1 week before her funeral.  Palpitations head rushes, stomach pains gut problems, episodes where I can't breath.  Totally crazy stuff.  When I write it down I realise it's basically knocked out two years of my life.  You are not alone.  Stu 

  • Hi [@Nicole37]‍ 

    Reading your story is identical to what I feel like I am currently going through. I lost my mum 4 months ago to cancer after a long battle. She was my absolute best friend and I was her biggest support throughout. 

    Since she passed I have had a dull ache in my back (lower left). Had an ultrasound scan but all seems ok. It comes and goes. Then my left arm started aching about 1.5 months ago, it came and went but is more persistent now. Then my left shoulder is hurting these last few days and today my entire neck. Also accompanied by dizzy spells every few days. Oh and my left thigh aches every other day or so. I too am finding it hard to know what is real and what is anxiety.

    I have a Dr appointment next week but constantly thinking I have cancer depending on where the pain is that day. But always on the left side of my body. I have a different self diagnosis every week. My husband is finding it hard to support me. 

    I am also starting counselling next week.

    How are you doing? Have your symptoms settled? 

    Hope your well x

  • Hi Emmty

    I got an email notification to say there has been a reply to my post.

    I am so sorry to hear you have lost your mum.

    It has been about 2 years since my original post. Quite sad reading it back as I can sense how desperate I was for help. So hopefully I have something helpful to say.

    I was the same as you. Pains everywhere, it could be leg one day, back the next. It was exhausting to keep up with! I'd self diagnose daily. 

    Looking back now to when I posted in 2020 i realise how bad my mental health was with anxiety. It really is a crippling condition. At the time I posted my health anxiety was at its worst (have been suffering with it for around 6 years now). Some of the issues I was facing back then such as nerve pains etc I have only in the last few months finally been seen to be tested for as there was such long delays with covid.

     

    My neurologist sent me for back MRI and also an electrical test to check my nerves in arms and legs because of the numbness and tingling I'd been getting all over on and off. All tests normal.

     

    Iv just recently had an ultrasound on my neck and jaw for what I was convinved was lymph node pains that iv been having for 18 months at least.... Ultrasound normal.

     

    Had 2 x ultrasounds in last 6 months on my left Underarm. The first showed a normal enlarged node then I started to feel aching further up my Underarm so paid privately to have the 2nd done. Both ultrasounds were normal.

     

    Honestly looking back I'm sure most of these pains and sensations were caused by my anxiety. They must have been as most subsided after I got scans done and told results were normal. It might sound silly but it really made me appreciate how powerful the mind is! I have now been diagnosed officially with fibro myalgia but I really don't think I have this, I think my only issue is anxiety. 

     

    My health anxiety (touch wood) has been under control mostly over the last year. I do still get thoughts creeping in regularly of what if this pain I'm feeling is something sinister, but I have put a lot of effort into learning how to deal with these thoughts so that they don't consume me and take over My life anymore.

    The only things I have found to work in all these years of living with health anxiety is mindfulness and breathing techniques. Search YouTube for mindfulness to cope with anxiety. I used to read recommendations about this sort of thing and I'd roll my eyes, but here I am all these years later and it is the only thing that has worked for me! You could ask your Councillor about mindfullness, lots are trained in this now!

     

    What age are you if you don't mind me asking? I'm in my 30s. My husband didn't know how to deal with me when mine was at its peak. He still doesn't understand it. Im sure he just thinks I'm a stereotypical hypochondriac...i think when it's triggered by watching someone so close to you dying of a disease like this it goes so much deeper than that, but I accept he can't understand as he hasn't been through it. 

     

    It takes time but you will find ways to overcome this anxiety. It is a lot to cope with ontop of the loss of your mum. x

     

     

  • Good evening,

    Gosh it's brought me to tears knowing that others are experiencing what I'm going through, and especially that you seem to be through the worst. I'm also trying for my second baby so this is definitely not helping us conceive!

    I am 33, I have a 4 year old and just feel so guilty that I'm not 'present' fully when I'm with her as I'm always worrying. But like OCD worrying that is consuming. And the exhaustion! Did you feel abnormally tired? Again, I worry this is something sinister as always listed as a symptom of the C word. 

    I will look into mindfulness for sure and mention it to the counselor. 

    Thank you so much for replying, it means A LOT 

     

  • Yes fatigue is the one thing which has never really left me and is still there almost daily...i am a born worrier and do still get worried and anxious about other things so I have just learned to accept fatigue is part of me now and allow myself to have slower days when I'm feeling very tired. I have a 6 year old and a 2 year old. I was pregnant with my 6 year old the first time trying but that was before this HA kicked in, then with my second it took 8 months or so. I have felt and still do sometimes all the same guilt as you mention about not being fully there with my girls, there are days I struggle with basic household tasks.

     

    I am 34 so we are very similar ages.

     

    You have been through a big trauma losing your mum to cancer. It wasn't until over a year after my dad died that I realised the enormity of it all. It is so hard. You are doing a great thing by starting counselling. I did it via the hospice and the lady I got was brilliant. She really helped me in the aftermath. It wasnt until a few years later i actively looked for someone who specialised in health anxiety. I found a great lady who did appointments via zoom. She has worked in senior positions in NHS mental health care and herself has suffered health anxiety so she was really helpful. She was the one who introduced some mindfulness based approaches to me. 

     

    Post here anytime, or if there is the option to private message anytime. It helps to have someone to talk to x