Dad died within three weeks of initial diagnosis...

My dad was admitted to hospital at the beginning of September with high infection levels and suspected gallstones. We were told four days later he had kidney cancer which had spread to the liver and spine, that he had no treatment options and that he had "short weeks to months" to live. He died three weeks to the day of this initial diagnosis. It has been a week and a half since he passed away. It was a massive struggle getting him home, but we managed it. He got home three days before he passed away, unfortunately he was bed bound and not concious alot at that time, but he was home and I know he knew it as he could still nod and respond partially. He was only 69 and I am 27.

It feels unreal to be even typing this story. Only just over a month ago did we think it would be something treatable - even if it was a worst case scenario and turned out to be cancer we never expected it to be like this. He had blood tests in July and was given the all clear. How can this be?? Something surely should have shown up? When he went to the doctors complaining of a bad back they self-referred him to the physiotherapist- an appointment he was not alive to make as he deterioated so quickly. It's all happened so fast.

In the first week he seemed his normal self... in the second week he seemed to be sleeping a lot more but we were still able to have discussions and do the crossword everyday... the third and last week was the worst.. on the Sunday we had a big chat, which felt very final. On the Monday he seemed confused and much worse somehow overnight... on the Tuesday worse again... on the Wednesday worse again, on the Thursday so bad we were advised to stay overnight at the hospital as he may not have lasted the night... But he did and the Friday we finally got him home... Early Monday morning he was gone.

His death was a powerful experience with the family and cats at his bedside at home. I am glad about that and it was what he wanted. But it was harrowing. I worry I will never be able to forget some moments of that. I cared for him all night every night that he was home on my own. I basically didn't sleep or eat for those days. I got through it by thinking to myself when he was in hospital that I could still see him and talk to him everyday at least. When he deterioated I survived that by thinking that I can still at least care for him and do what was right for him. When he passed I was still in carer mode and asking my mum if she thought he needed more mouth care or lip solve or thinking I could still see him breathing etc. How could he be breathing one minute and not the next?

Sorry for the ramble, just so much has happened in such a small space of time. I know it has happened and am trying to process it and bear in mind his words of wisdom as to how to cope. I'm not sure how I feel about anything most of the time and I don't know if I can ever get over this. He was the corner stone of my family. I have a constant headache. I am going to have to go back to work soon and leave my Mum and Sister at home.

Its all just too much to comprehend.

Parents
  • I lost my Mum 12 days ago.She was diagnosed with Acute Myeloid Leukaemia with planning for low dose chemotherapy to start the next week . She was given up to two years prognosis I left her on Friday to drive eight hours home, she was standing and happily waving  and although she had a lot of care from me in that week she was not in any way terminal  as I could see .I got home , called and got my brother on the phone .,Mum was being transferred to hospital by ambulance after a rapid deterioration - eight hours.

    I managed to stay home four days and on the fifth my sister called as she had gone to my Mums to care for her , She said come back now -today and I drove the eight hours back.  She was given this time 'weeks to a month and then 'days' it was just so shocking. She survived three days , chatty , joking as usual telling naughty rhymes to the Chaplain but died on Sunday morning . The rapidity of this disease has astonished me and I can scarcely believe I have lost my beautiful Mum. I really can understand how shocking this is for you . I hope we can all get through this , I think once the funeral is done we will feel a little lighter somehow. 

  • Hi Kitty1,

    I'm so sorry to hear about the loss of your lovely mum. What a shock it must have been to think you had more time for it to be snatched away like that. I hope you have a good support system in place to help you through this.

    It is really helpful to know there are others out there that understand the shock of this awful disease. I can barely believe it either. For some reason I had the impresssion that cancer was more long and drawn out; I bet neither of us ever thought in a million years we'd be facing the news that one of our loved ones had but weeks to live.

    Hopefully after the funeral we receive some closure somehow. Waiting for the funeral feels like an awful limbo at the moment, never really sure if I am coming or going at the moment.

    If you need anyone to chat too feel free to message any time xxx

  • Hello , 

    Thank youfor your reply .Yes I think once the funeral is done my sister , brother and I will feel a little better- going through the numb stage I think and will remain off work tilNovember. The funeralis the 17th .I think what makes it all the more surreal is the immense amount of stuff you have to do immeadiately , register the death , sort the will out , organise the funeral ,try and find all the people that need to know and tell them comforting all those along the way when you are in disbelief yourself.. We also have to sell the house and had to prepare that as well.  I work in a medical field but still could not believe how rapid it was just feel very cheated ,as did my Mum.  This time of awaiting a funeral is very long and I feel I can do little but sit and wait. I am trying to write the eulogy , and that is hard and strange. Lots of love to you xx

Reply
  • Hello , 

    Thank youfor your reply .Yes I think once the funeral is done my sister , brother and I will feel a little better- going through the numb stage I think and will remain off work tilNovember. The funeralis the 17th .I think what makes it all the more surreal is the immense amount of stuff you have to do immeadiately , register the death , sort the will out , organise the funeral ,try and find all the people that need to know and tell them comforting all those along the way when you are in disbelief yourself.. We also have to sell the house and had to prepare that as well.  I work in a medical field but still could not believe how rapid it was just feel very cheated ,as did my Mum.  This time of awaiting a funeral is very long and I feel I can do little but sit and wait. I am trying to write the eulogy , and that is hard and strange. Lots of love to you xx

Children
  • Heya,

    My sister, mum and I are also going through this numb stage at the moment. All I can face to do when I'm here at my parents house is stare into space and watch whatever rubbish is on TV, haha. I hope I will be able to grieve more properly after the funeral and regain some feeling of control over my life again. Our funeral is not until the 23rd - an agonising three week long wait since the date of death. I am going to go back home today and see my partner and some friends over the weekend which I hope will make me feel a bit more normal again. Hopefully you have some nice things planned, or at least something to do amongst all the madness which can help take your mind off things?

    There is so much to do isn't there? The list never seems to stop growing. Inviting people to the funeral is difficult, none of this should be happening to begin with. We are also in the process of writing eulogies and organsing pictures for the service sheet etc. It is definitely very odd trying to think about what to write or what they would have wanted but I think we have now gotten some idea of what we want to include in it. I wish you the absolute best for the 17th,  even though there is so much to do you've got this! We will both get there in the end. Lots of love xxx