Dad died within three weeks of initial diagnosis...

My dad was admitted to hospital at the beginning of September with high infection levels and suspected gallstones. We were told four days later he had kidney cancer which had spread to the liver and spine, that he had no treatment options and that he had "short weeks to months" to live. He died three weeks to the day of this initial diagnosis. It has been a week and a half since he passed away. It was a massive struggle getting him home, but we managed it. He got home three days before he passed away, unfortunately he was bed bound and not concious alot at that time, but he was home and I know he knew it as he could still nod and respond partially. He was only 69 and I am 27.

It feels unreal to be even typing this story. Only just over a month ago did we think it would be something treatable - even if it was a worst case scenario and turned out to be cancer we never expected it to be like this. He had blood tests in July and was given the all clear. How can this be?? Something surely should have shown up? When he went to the doctors complaining of a bad back they self-referred him to the physiotherapist- an appointment he was not alive to make as he deterioated so quickly. It's all happened so fast.

In the first week he seemed his normal self... in the second week he seemed to be sleeping a lot more but we were still able to have discussions and do the crossword everyday... the third and last week was the worst.. on the Sunday we had a big chat, which felt very final. On the Monday he seemed confused and much worse somehow overnight... on the Tuesday worse again... on the Wednesday worse again, on the Thursday so bad we were advised to stay overnight at the hospital as he may not have lasted the night... But he did and the Friday we finally got him home... Early Monday morning he was gone.

His death was a powerful experience with the family and cats at his bedside at home. I am glad about that and it was what he wanted. But it was harrowing. I worry I will never be able to forget some moments of that. I cared for him all night every night that he was home on my own. I basically didn't sleep or eat for those days. I got through it by thinking to myself when he was in hospital that I could still see him and talk to him everyday at least. When he deterioated I survived that by thinking that I can still at least care for him and do what was right for him. When he passed I was still in carer mode and asking my mum if she thought he needed more mouth care or lip solve or thinking I could still see him breathing etc. How could he be breathing one minute and not the next?

Sorry for the ramble, just so much has happened in such a small space of time. I know it has happened and am trying to process it and bear in mind his words of wisdom as to how to cope. I'm not sure how I feel about anything most of the time and I don't know if I can ever get over this. He was the corner stone of my family. I have a constant headache. I am going to have to go back to work soon and leave my Mum and Sister at home.

Its all just too much to comprehend.

Parents
  • Hi Chma,

    I don't know you personally but your story touched me and I had to respond.

    My sweet dad actually passed away on the first week of September, two weeks after he was diagnosed with Pancreatic Cancer, which we were advised was advanced and had spread to his liver. There were no treatment options available as the doctors felt he was too weak and also had weeksmonths left to live. He deteriorated fast and I am still haunted by some of the last few days watching him struggle with pain and sickness. Like your dad he was also 69 and I am also 27. My dad actually had several blood tests and even had two colonoscopys, an endoscopy and a CT scan in May. We were advised all was fine at the time so are still struggling to comprehend how nothing was picked up until he became so poorly that we had to take him to A&E in August. He was losing a lot of weight and had become very weak.

    Once he was diagnosed, it all happened very quickly. He went from being mobile to just completely bed bound and unable to walk on his own. It it a lot to come to terms with in a short space of time, especially when they go to the doctors and have all of these tests done and they can't find anything. Just to advise you, you can pursue the matter further with your doctors - because something could have been missed which is esentially the difference between life and death.

    I want to tell you it will get easier, but right now the pain and the loss is raw. I lived with my dad and the evenings/weekends are unbarable without him. Honestly, people tell you it will get easier but I don't think it does. You will always miss him and the fact of the matter is we have had no closure as everything escalated in such a short space of time. If anything, just remember your dad loved you and is always with you. He wants you to be happy and he wants you to find a way to move forward and continue, so keep the close to you.

    I like to think my dad is still with me, I still talk to him and feel him encouraging me so you should try and do the same. Also, remeber that 27 years with your dad is a blessing and you have so many memories to cherish and share with others. Make sure you do that.

    Here if you want to chat anytime. xxx

  • Hey PJB7,

    Thank you for much for your reply and I am so sorry that you have also gone through a very similar circumstance. I wouldn't wish this to happen to anybody but it is helpful to know that other people have gone through similar things. I'm not sure why that is, maybe because it feels like such an unreal situation so knowing that other people have experienced it makes me feel less alone.

    That is one of the difficult things about this isn't it? The fact that tests were done and we were all relieved one moment to the next moment everything not being OK at all. How that is possible is beyond me. The GP surgery are going to have a conference to figure out if there is anything that could have been done or that they missed as they were all incredibly shocked at how things developed too. Are you pursuing things with your doctors?

    My dad suffered from terminal agitation during the end making the nights unbearable. How can you even help someone come to terms with death when it is happening so fast? I wish I knew what to say or what to do to help him. But in the end all I could do was hold his hand tell him to try not to be scared and that we were all there with him and that he was safe with us. Like you said, because it all happened so fast there was no time for him or for us to get any closure on the situation. He was such a specal man. Even though would have been impossible for him to accept the situation, he was still able to give me and my sister advice that I will always have with me. He said he knew we would be upset and it will be a massive gap in our lives but that he wanted us to continue to grow and learn from it and to try to view it philosophically.

    You are right, I feel blessed to have had such a wholesome and kind hearted man in my life, even if he was taken from us too soon. His influence will always be with me, I carry on thinking about what he would have said or the advice he would give me; which I think will become more helpful with time. At the moment I feel too numb to take most of it on board to be honest but I will always have his wisdom beside me. All we can do is remember the good times and feel lucky to have had these amazing father figures in our lives - something a lot of people have never experienced. Additionally, although we have had no closure because it all happened so fast I am glad that neither of our fathers had to suffer for too long. Living with cancer for years seems unimaginable after how awful just three weeks of it were.

    I hope things get easier for you in time, as the saying goes. I think it is less about things getting easier and more about learning new ways to cope with life as it becomes less raw. I hope you have a good support system and thank you again for reaching out. Please do message me if you want to chat as well xxx

     

Reply
  • Hey PJB7,

    Thank you for much for your reply and I am so sorry that you have also gone through a very similar circumstance. I wouldn't wish this to happen to anybody but it is helpful to know that other people have gone through similar things. I'm not sure why that is, maybe because it feels like such an unreal situation so knowing that other people have experienced it makes me feel less alone.

    That is one of the difficult things about this isn't it? The fact that tests were done and we were all relieved one moment to the next moment everything not being OK at all. How that is possible is beyond me. The GP surgery are going to have a conference to figure out if there is anything that could have been done or that they missed as they were all incredibly shocked at how things developed too. Are you pursuing things with your doctors?

    My dad suffered from terminal agitation during the end making the nights unbearable. How can you even help someone come to terms with death when it is happening so fast? I wish I knew what to say or what to do to help him. But in the end all I could do was hold his hand tell him to try not to be scared and that we were all there with him and that he was safe with us. Like you said, because it all happened so fast there was no time for him or for us to get any closure on the situation. He was such a specal man. Even though would have been impossible for him to accept the situation, he was still able to give me and my sister advice that I will always have with me. He said he knew we would be upset and it will be a massive gap in our lives but that he wanted us to continue to grow and learn from it and to try to view it philosophically.

    You are right, I feel blessed to have had such a wholesome and kind hearted man in my life, even if he was taken from us too soon. His influence will always be with me, I carry on thinking about what he would have said or the advice he would give me; which I think will become more helpful with time. At the moment I feel too numb to take most of it on board to be honest but I will always have his wisdom beside me. All we can do is remember the good times and feel lucky to have had these amazing father figures in our lives - something a lot of people have never experienced. Additionally, although we have had no closure because it all happened so fast I am glad that neither of our fathers had to suffer for too long. Living with cancer for years seems unimaginable after how awful just three weeks of it were.

    I hope things get easier for you in time, as the saying goes. I think it is less about things getting easier and more about learning new ways to cope with life as it becomes less raw. I hope you have a good support system and thank you again for reaching out. Please do message me if you want to chat as well xxx

     

Children
  • Hi Chma,

    You're not alone and in ways you are right, it is a comfort to know that other people understand the pain. It all feels like a bit of a nightmare in so many ways that you just want to wake up from but the reality quickly kicks in and reminds you of this new phase of life. I think the challenge has been coming to terms with the fact that you will never see him or talk to him again, I struggle with that the most.

    I agree that is the hardest part, especially when you think about them going to the GP and having all these tests, Glad you are pursuing things further, we are also doing the same to try and gather if something was potentially missed because like you said the deterioration was rapid.

    Let's take comfort in the fact our fathers did not suffer because as you said the two/three weeks we experienced was difficult, especially when you cannot do anything to help them. It will take time but we will continue on as our dad's would want us too. Try and occupy yourself during the day and spend time with your loved ones. That will help.

    xxx

  • Hi PJB7,

    You are right, I think that is why the mornings can be difficult sometimes. Yeah, that is the thought that usually triggers me - just knowing that I'll never see him again. But I suppose that just makes it all the more important to think about the good times and remember fondly as much as we can to keep the images we have of them in our hearts and mind as strong and alive as they can be.

    We can also take comfort in the fact that we were both there until the end and did the best we could for them at the time when it mattered the most. Take care of yourself and be kind to yourself and the others around us. Our Dad's would want that.

    xxx