Dad passed away 3 weeks after being diagnosed

Hi,

My dad passed away on sunday following his disgnosis of gastric cancer 3 weeks ago. The cancer had spread to his liver and a number of other places by the time of diagnosis. Dad had always been known as the healthy one so it became a huge shock that he had cancer and that it had spread so much. We knew he wasn't well and he had severe back pain and was losing weight. Worst case scenario we thought it might be cancer of the spine and if that was the case it may be treatable, unfortunately this was not the case. He was still in good spirits and his aim was to come home and die in the comfort of his own home. He had refused treatment as the effects of the treatment were not worth extending his life by approximately 6 months or so. This was his choice and we supported that. The doctor did not give us an approximation of how long dad had left but he did say that the cancer was at an advanced stage. When Dad found out that he had cancer i witnessed him cry for the first time in my 33 years, this upset me a lot and it still does to this day. He always said he wasn't afraid of dieing but to see him cry told me otherwise. 2.5 weeks later we finally got my dad home, which we were happy with. The second day of him being back home, he began to be delirious and aggitated due to the pain. He was then put on a syringe driver. I didn't expect the syringe driver to sedate him so heavily so that he was unable to talk, eat or drink. The day before he had the driver fitted, he was sitting in his chair, chatting, laughing and being his normal self. From being like this to being technically paralised has effected me greatly. Euthensia is illegal in this country but by witnessing the effects of the driver, to me, it looks it's a slow inhumane way for my dad to see his last days. He ultimately died of dehydration which upsets me greatly as i watched him dehydrate and there was nothing i could do about it. I really wish there was a drug that could kill the pain but allow the patient to eat, drink and talk at the same time. I really hope this is something that is being worked on as i wouldn't wish anyone to witness what i witnessed. I stayed with him for 2 days and 2 nights before i broke as i could no longer mentally cope with seeing my dad slowly die, especially after seeing him upbeat 2 days prior to this. I said my final goodbye to him on saturday evening and he was making noises as if he could hear me, i really hope he could. I'd like to know other peoples thoughts on syringe drivers and the effects they have on the patients and their loved ones. To me, it begs the question as to whether euthanasia is a more humane way to die? Also, i'd be interested to hear about how people cope with the death of a loved one such as a father figure. I miss my dad so much already, he was my idol.

Parents
  • Hi Gonefishing 

    Your post really struck a chord with me because my Mum died only three weeks after diagnosis. What a shocker, hey? I am so sorry that this has happened to your lovely Dad and you and your family. Really heartbreaking to read your post. You must have been still trying to come to terms with the diagnosis...never mind losing your Dad :( 

    I don’t have any experience of a syringe driver but...as awful as it sounds, I was glad (not exactly...can’t think of another word) that my Mum was taken suddenly before she could start aggressive treatment and anything along the lines of palliative sedation. I knew she was going to be taken by cancer...I just didn’t want her suffering for months and months under sedation (it was going that way - she was terminal with extensive cancer spread in both lungs, liver and likely elsewhere according to her consultant when I spoke to them) with no quality of life. I wanted her to have dignity in dying and so would she...she was a very proud woman. Also...purely from a selfish point of view...I would have found it very hard to see her like that...feeling helpless and having to watch her go from how she was in life (so vibrant) to nothing :( 

    I have a religious belief that doesn’t support Euthanasia...but I have to say that I am deeply conflicted about this. I always have been. My spiritual leader has made it quite clear that palliative sedation is acceptable...but not euthanasia (or assisted dying).  All I know is that I would want a loved one to have dignity in their final days...to me...well I could not see my mum wanting to be under sedation, what with her being so dignified in her life  xx and so I guess I will have to remain conflicted about this. 

    I am a few years on from losing my Mum and I can tell you that time really is a great healer and things will get better for you xx just have to go with it...don’t worry about how you should or shouldnt be feeling right now xx 

     

Reply
  • Hi Gonefishing 

    Your post really struck a chord with me because my Mum died only three weeks after diagnosis. What a shocker, hey? I am so sorry that this has happened to your lovely Dad and you and your family. Really heartbreaking to read your post. You must have been still trying to come to terms with the diagnosis...never mind losing your Dad :( 

    I don’t have any experience of a syringe driver but...as awful as it sounds, I was glad (not exactly...can’t think of another word) that my Mum was taken suddenly before she could start aggressive treatment and anything along the lines of palliative sedation. I knew she was going to be taken by cancer...I just didn’t want her suffering for months and months under sedation (it was going that way - she was terminal with extensive cancer spread in both lungs, liver and likely elsewhere according to her consultant when I spoke to them) with no quality of life. I wanted her to have dignity in dying and so would she...she was a very proud woman. Also...purely from a selfish point of view...I would have found it very hard to see her like that...feeling helpless and having to watch her go from how she was in life (so vibrant) to nothing :( 

    I have a religious belief that doesn’t support Euthanasia...but I have to say that I am deeply conflicted about this. I always have been. My spiritual leader has made it quite clear that palliative sedation is acceptable...but not euthanasia (or assisted dying).  All I know is that I would want a loved one to have dignity in their final days...to me...well I could not see my mum wanting to be under sedation, what with her being so dignified in her life  xx and so I guess I will have to remain conflicted about this. 

    I am a few years on from losing my Mum and I can tell you that time really is a great healer and things will get better for you xx just have to go with it...don’t worry about how you should or shouldnt be feeling right now xx 

     

Children
  • Hi [@starcatone]‍ 

    I really appreciate your response. I'm sorry to hear about the passing of your mother. Losing a parent is the hardest this i've had to go through. I do question whether it would have been less hard if he has passed away suddenly? Seeing him deterioate so quickly over just 3 days was really tough for him and the family. I just wish the medication was more controllable, so that he could speak to us. I am not questioning the doctors that administered it at all as he was in so much pain, he couldn't live with it. As long as he passed without pain, which i now beleive that he did, that makes me feel a little better, It's the first time anyone close to me has been effected by cancer and until you experience that situation, it really is hard to explain to people.

    Thank you for your thoughts. Take care.