I miss my dad so much.

Hi everyone,

I don't really know where to start.. I'm 26 and my dad was 65 so no age and . I lost my best friend, my hero, my rock at the beginning of September the week my son started primary school.. we had the toughest summer.. dad was initially diagnosed in 2012 with advanced prostate cancer with it spread to the  bones and lymph nodes.. but was hormone receptive until beginning of last year so we did have a good run up until that point.. last year he came to live with me , my husband and our 2 kids as he stared chemo as things weren't working out with my mother.. anyway the chemo in itself was an emotional rollercoaster which we didn't really anticipate as we were thrown into the deep end so to speak. It was  heartbreaking to watch him struggle to then get through 10 cycles for it To not have done anything.. end of July  this year it had gone  to the liver, behind the abdomen wall, urea that and growing in the lymph nodes.  it was everywhere and we was told a few short months in August if he didn't start chemo.. well he went in for a routine op 4th August for kidney stents and he never came out of hospital. Meaning he never had the chemo.. . he developed pneumonia and again which he fought with incredible strength, had a stroke and has full left side paralysis.. and day by day travelling to the Royal Marsden in Chelsea watching him slowly waste away and deteriorate is something that has massively effected me especially as the stroke had effected him mentally so he wasn't always my usual dad :-( ... then he was transferred to his local hospital which is when he really took a turn for the worst and the palliative team got him into a hospice on the weds as we was unresponsive and he passed on the Friday.. my world fell apart.. I've dealt with it all majority on my own with my brother and I just am not coping with him not being here, not talking to him, my kids not seeing him or making anymore memories... it's obviously still so raw but it's just genuinely breaking my heart... the emotional waves I get are so overwhelming where I physically cannot stop the tears.. the hospice has been great and are putting us in touch with grief councillors but I guess I was just after some advice or experiences of anyone unfortunately having to go through this utter rubbish time.  

Sorry for the long post but I guess that's the first time I've really reflected on the last 8 or so weeks.

 

xx

Parents
  • Amy l am so sorry......but they are the words you will hear of so many people but it does not help. Nothing does. You did the same as me for my firsr few posts you told the full story. It helped me get it out. I lost my amazing mum on aug 10th to lung cancer. She never even smoked or did anyone around her. But she was just unlucky to have a tumour the size of 8cm in her left lung. My mum was so fit and healthy and worked right up to she was told she had cancer. That changed her as she was terrified. I am the youngest of 3 and am 44 years old but she still insisted in calling me her baby. I could not ask for better parents. My mum was the head and she was there for us all if we need her. 

    Anyway after a ct scan the doctors all came back and said they could not do surgery because of where it was sitting as it was to high up right next to her broncial branch and main artery so removing it was not an option. But good news was they could cure her with 4 weeks of treatment. The cancer was contained in one lung it was not anywhere else. My mum went through the 4 weeks doing everything she was told. Radiothrepy in the morning and chemo in afternoons. She was still terrified and kept asking for reasurance. Me and my husband were with her all the way. Her 4 weeks passed and another scan and xray was done. The doctor said thats you there is just scar tissue left. Go home and enjoy your summer. I actually laugh when l think of that. She was shattered from treatment she could hardly move. Her appetite had went altogether and she started going nuts. Saying her legs were aching and she could not stop moving them. And l mean she paced the floor making my dads life hell. Doctors again nothing showed up. Still went on during the night until my dad called me in tears saying he could not take anymore. So of we went to A&E sat for hours where they tried bloods and xrays nothing again. It was a hell of a time. She cried everyday was convinced she still had cancer and this leg thing. Then a mcmillan doctor called to say to dad is your wife taking metracoplamide for anti sickness. He checked and she was. He said stop them right away thats whats causing her leg issue. Its one of the side affects. I was so angry as they had no idea what hell we had been through for weeks.

    That just left her with this panicing that she still had cancer. She started saying there were lumps on her kneck and he shoulder was sore. She was filled with anxiety and we all thought she was imagining it. Infact we gave her a quite hard time as she cried everyday and would want us around her constantly. She wld text and say please come in l love you.  Of course l would get ready and go in and she would just cry. So l though we will try a diffrent approach as my dad was worried sick. He had just been through all that and now everyday she was crying. So l started getting on at her saying your imagining this mum and you are making dad ill. He is going to drop down dead with a heart attack if you dont stop this carry on. The doctors have told you are fine. You are getting to paniced and its like all you care abt is yourself. So off we go to hospital again to get bloods and scan. They said again she was fine. But she was called to her gp next morning. They had found a blood clot in her shoulder and it needed an umberella in to stop it going to her brain or heart but she was home within hours.

    So we goes back for her follow up with GP and she asked to look at mums kneck. Its the first time l had saw it and there was lumps as she had being saying but l had never checked. The gp mentioned swollen lymth nodes and l just looked at my husband as l new what that meant. We waited until we came out and my husband phoned the GP and said whats happening as you could not talk about cancer in front of my mum it was like she was so scared. The GP said to my husband her lymth nodes are all swollen. My husbands in the medical industry and he said to the gp are you thinking what l am and that it went metastatic. Meaning it was back and had spread. She said l won't lie yes thats what l think.

    So my mum went back to hospital that night as her calcium was up and she never came home. A doctor told me the next day you are looking at a few weeks!!! It never sank in. 

    But l was not leaving her in that hospital so l worked hard to get her a bed in a hospice for pallative care and she was moved within 2 days. I cannot praise them enough. They were amazing. My mum died a month later if that. But who was the doctors that told her she was fine. How many scans get done and nobody noticed that it had spread across her chest and up her kneck and back in her lung. So angry at that. In a space of 2 weeks my mum faded away in front of my eyes. I miss her so much it hurts. 

    I know how you féel about your dad its so awful its the worst thing l have been through Amy xx

Reply
  • Amy l am so sorry......but they are the words you will hear of so many people but it does not help. Nothing does. You did the same as me for my firsr few posts you told the full story. It helped me get it out. I lost my amazing mum on aug 10th to lung cancer. She never even smoked or did anyone around her. But she was just unlucky to have a tumour the size of 8cm in her left lung. My mum was so fit and healthy and worked right up to she was told she had cancer. That changed her as she was terrified. I am the youngest of 3 and am 44 years old but she still insisted in calling me her baby. I could not ask for better parents. My mum was the head and she was there for us all if we need her. 

    Anyway after a ct scan the doctors all came back and said they could not do surgery because of where it was sitting as it was to high up right next to her broncial branch and main artery so removing it was not an option. But good news was they could cure her with 4 weeks of treatment. The cancer was contained in one lung it was not anywhere else. My mum went through the 4 weeks doing everything she was told. Radiothrepy in the morning and chemo in afternoons. She was still terrified and kept asking for reasurance. Me and my husband were with her all the way. Her 4 weeks passed and another scan and xray was done. The doctor said thats you there is just scar tissue left. Go home and enjoy your summer. I actually laugh when l think of that. She was shattered from treatment she could hardly move. Her appetite had went altogether and she started going nuts. Saying her legs were aching and she could not stop moving them. And l mean she paced the floor making my dads life hell. Doctors again nothing showed up. Still went on during the night until my dad called me in tears saying he could not take anymore. So of we went to A&E sat for hours where they tried bloods and xrays nothing again. It was a hell of a time. She cried everyday was convinced she still had cancer and this leg thing. Then a mcmillan doctor called to say to dad is your wife taking metracoplamide for anti sickness. He checked and she was. He said stop them right away thats whats causing her leg issue. Its one of the side affects. I was so angry as they had no idea what hell we had been through for weeks.

    That just left her with this panicing that she still had cancer. She started saying there were lumps on her kneck and he shoulder was sore. She was filled with anxiety and we all thought she was imagining it. Infact we gave her a quite hard time as she cried everyday and would want us around her constantly. She wld text and say please come in l love you.  Of course l would get ready and go in and she would just cry. So l though we will try a diffrent approach as my dad was worried sick. He had just been through all that and now everyday she was crying. So l started getting on at her saying your imagining this mum and you are making dad ill. He is going to drop down dead with a heart attack if you dont stop this carry on. The doctors have told you are fine. You are getting to paniced and its like all you care abt is yourself. So off we go to hospital again to get bloods and scan. They said again she was fine. But she was called to her gp next morning. They had found a blood clot in her shoulder and it needed an umberella in to stop it going to her brain or heart but she was home within hours.

    So we goes back for her follow up with GP and she asked to look at mums kneck. Its the first time l had saw it and there was lumps as she had being saying but l had never checked. The gp mentioned swollen lymth nodes and l just looked at my husband as l new what that meant. We waited until we came out and my husband phoned the GP and said whats happening as you could not talk about cancer in front of my mum it was like she was so scared. The GP said to my husband her lymth nodes are all swollen. My husbands in the medical industry and he said to the gp are you thinking what l am and that it went metastatic. Meaning it was back and had spread. She said l won't lie yes thats what l think.

    So my mum went back to hospital that night as her calcium was up and she never came home. A doctor told me the next day you are looking at a few weeks!!! It never sank in. 

    But l was not leaving her in that hospital so l worked hard to get her a bed in a hospice for pallative care and she was moved within 2 days. I cannot praise them enough. They were amazing. My mum died a month later if that. But who was the doctors that told her she was fine. How many scans get done and nobody noticed that it had spread across her chest and up her kneck and back in her lung. So angry at that. In a space of 2 weeks my mum faded away in front of my eyes. I miss her so much it hurts. 

    I know how you féel about your dad its so awful its the worst thing l have been through Amy xx

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